Chromosome 18 Blog
Latest Community News

Clinical Research Center (CRC)
Clinical Research Center Video Library Learn how the research from the Chromosome 18 Clinical Research Center directly impacts families around the world. Playlist 1 Videos

The Power of 18 Challenge!
This year for Power of 18 we changed the challenge a bit. For 18 days, we got to see families sharing their challenges for Chromosome

Katrina Delaney Shares her Story – New Chromosome 18 Family.
When I was 20 weeks pregnant we found out that our daughter, Keira, had enlarged brain ventricles. As a first time mom, hearing this and
2022 Year In Review
Let me introduce myself for those of you that don’t know me. My name is Neale Parker and I am the CEO here at The
Power of 18!
The Power of 18 is back! This year, we’re doing a state-by-state competition, Help your state win while helping our members with: Essential medical management
Why Can’t You Just Put Back the Missing Piece of the Chromosome?
In this article written by Dr. Cody, she discusses why we can’t just put back the missing piece of a chromosome. Wouldn’t that just

Get to know our C18 Team – Meet Tessa!
(Pictured above from left to right: Maria Vazquez,Tessa Uvideo, Emily Haase) Hi! My name is Tessa Uviedo, and this summer, I am interning for Chromosome

Have you ever wondered what the Chromosome 18 Clinical Research Center is like?
Have you ever wondered what the Chromosome 18 Clinical Research Center is like? What goes on in the lab? How does Dr. Cody and her
Conference Highlights & Favorites!
“Its life-changing! You get to meet so many amazing families and make long-lasting friendships! You will find your tribe and it’s the best feeling ever!”

What to Expect at Conference
When most of you get your child’s diagnosis of a chromosome 18 abnormality, you probably felt alone at one time or another. The fear of
How did you tell your loved one that they have a chromosome 18 difference?
A question I’ve seen asked numerous times throughout the 17 or so years of being a member of The Registry. Now that we’ve got this great blog,
“Stay Positive & Keep Hopeful” – Meet Shaleigh Hawkins
What are the chances of someone that has a Chromosome 18 abnormality to birth a babythat will also have the same syndrome? The answer is