Chromosome 18 Blog
Latest Community News
Supporting the Chromosome 18 Community at Home
Families and caregivers supporting individuals across the lifespan with chromosome 18 genetic conditions often find that daily life at home involves unique planning. Because every
Landing the Right Job: A Practical Guide for Young People with Disabilities
You’re talented, ready to work, and deserving of a role that fits your life. The trick isn’t “overcoming” anything—it’s matching your strengths with employers who
“We’re just regular kids.” – a Video Interview with Self-Advocate, Ava Percy
Ava Percy is one of our youngest Self-Advocates at age 13. While chatting over Zoom, she told me she prepared her answers and was happy
Building Without Permission: A Disabled Entrepreneur’s Blueprint for Doing It Anyway
Starting a business when you live with a disability doesn’t come with a user manual. What you get, more often than not, is a tangled
“Finding Your Tribe”
Bea Powell, mom to Daniel, 18q- and our fabulous South Central Coordinator exudes joy, kindness, compassion, and love for her family and the Registry during
Chromosome 18 Parent Story: Christina Pasculli
This time of year is bittersweet for my family; March 10, 2023, we received my son’s official Diagnosis of Tetrasomy 18p and Isochromosome 18p and
Practical Ways Parents of Special Needs Children Can Navigate Work-Life Balance
Balancing a career while raising a child with special needs presents unique challenges that require thoughtful strategies and resources. Parents often find themselves juggling multiple
Design for Independence: Transforming Your Home’s Accessibility
Design for Independence: Transforming Your Home’s Accessibility Navigating the process of making your home accessible can seem daunting. As your needs or the needs
Beyond Companionship: The Critical Role of Service Dogs in Promoting Independence
Service dogs are more than companions; they are lifelines for individuals with disabilities, offering them a unique form of support that fosters greater autonomy
Strategies for Making Job Openings More Accessible to People with Disabilities
Ensuring job opportunities for people with disabilities transcends mere legal compliance, aiming instead to nurture a diverse and inclusive workplace. By actively making these opportunities
Celebrating Rare Disease Day – Niki’s 18 Short Stories
By Niki Junker, a Chromosome 18 parent: Day 1: February 29 is Rare Diseases and Disorders Day. For the next 18 days, I will be
First Time Camp Experience
The 2023 conference in Columbus, OH, was my first and most certainly not my last. Our family decided I would go on my own this