Regional & Syndrome Coordinator Support
Find Your Coordinator
MEMBERSHIP Benefit! Chromosome 18 members have access to the contact information of our wonderful Regional and Syndrome coordinators. Coordinator positions are filled by individuals who have volunteered to connect you with resources and events in your area or about your syndrome. They are parent volunteers who will help you to the best of their abilities.
Regional Coordinators
Regional coordinators try to have at least one social event every year in each US region, and these are a great way to get to know people in your area.
Syndrome Coordinators
Syndrome Coordinators can provide you with more syndrome specific information and resources, as well as share their own experience with Chromosome 18 syndromes
It is our honor to serve as the Rocky Mountain Coordinators! In February 2022 we welcomed Casey into...More
We are the Anama Family! And we are the Great Plains Coordinators for the Chromosome 18 Registry and...More
Sibling Coordinator, Kendall Powell, is from Owenton, KY. Her older brother, Daniel, was diagnosed w...More
My name is Camilla Downs (pronounced like Pamela, but with a “C”), and I’m mom to Lillian Darnell an...More
Hello! Welcome to our story of becoming involved with The Chromosome 18 Registry & Research Soci...More
We are the Hight Family – Spencer, Jodi, Chase and Lowrey. We live in the DFW area in a town ...More
Our daughter Amy is a young adult with Ring 18. She is 23 years old. She has one brother Dan (27) an...More
We are parents to Magnolia who was diagnosed with Tetrasomy 18p in 2020 at 10 months old. I remember...More
I joined the Chromosome 18 Registry and Research Society in 2008, shortly after the birth of my son,...More
Hi, I’m Kelly Tremonte — a wife of 14 years to my husband, John, and a stay-at-home mom to four amaz...More
Jude was born in Indiana and graduated from Purdue University with a degree in Mechanical Engineerin...More
International Ambassadors
Africa – Christine Mutena
Mexico – Nancy Chavez
Brazil – Dalton Vilela