*This year’s Conference will be a little different from previous years as the hotel has a water park! While there will still be educational sessions for parents, along with Sibling & Self-Advocate tracks, there will also be free time allotted in the schedule for families to enjoy the water park!

Over the course of the three days, many different speakers and events are available including four tracks of presentations for families of young children, families of adolescents/young adults, siblings, and self-advocates.

The Sibling Track is planned and run by our adult siblings trained in child development and facilitation. Generally, sessions are geared for ages 13+ unless otherwise noted. There will be a few all-ages sessions where siblings under 13 are invited to attend.

The Self-Advocate Track is for those affected individuals over the age of 14+ who can function independently within the conference environment, or have a parent or caregiver to assist them if they are not independent. There will be breakout discussion sessions for each syndrome group as well as for regional groups.

There is definitely something for everyone! Our schedule is not final and is subject to change. Please check back for our Tentative Schedule with a list of speakers and program tracks closer to the start of Conference.