Board of Directors

Executive Board

Jannine DeMars Cody

San Antonio, TX
Founder & President
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Liz Woodfield

Ringoes, NJ
Vice President of Development
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Katie Schilly

Olathe, KS
Vice President for Member Relations
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John Drymala

San Antonio, TX
Treasurer
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Dave Aldrup

Katy, TX
Secretary
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Board Members

Regional Coordinators

Northeast – Kim and Dave Stoddard
Mid-Atlantic – Mike Fudala
Southeast – OPEN
Great Lakes – Melanie Gorrell
Rocky Mountain – Angie Moss
Great Plains – Kerry Connolly
South Central – OPEN
Texas Area – Tam Aldrup
Northwest – Joy Wilson
Southwest – Tracy Stevens

Canadian Coordinator- Shelley Hunt

Bereavement Coordinator – Catherine Burzio
Sibling Coordinator – Catherine Larson
Self-Advocate Coordinator – Racine Ghiz

Syndrome Coordinators

Tetrasomy 18p – Marie Primeau
Trisomy 18 – Jude Wolpert
Ring 18 – Tanis Nicholson
18p- – Katharine Newman
18q- – Kelly Collins