Board of Directors

Executive Board

Jannine DeMars Cody

San Antonio, TX
Founder & President
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Doug Masterson

Malibu, CA
Vice President for Public Relations
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Kathy Borello

Homer Glen, IL
Vice President for Member Relations
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John Drymala

San Antonio, TX
Treasurer
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Dave Aldrup

Katy, TX
Secretary
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Board Members

Regional Coordinators

Northeast – Kim and Dave Stoddard
Mid-Atlantic – Mike Fudala
Southeast – Becky Hobby
Great Lakes – Melanie Gorrell
Rocky Mountain – Angie Moss
Great Plains – Cindy Josefson
South Central – OPEN
Texas Area – Tam Aldrup
Northwest – Joy Wilson
Southwest – Tracy Stevens

Canadian Coordinator- Shelley Hunt

Bereavement Coordinator – Charlett Korling
Sibling Coordinator – Dalton Guthrie
Self-Advocate Coordinator – Mark Sogard

Syndrome Coordinators

Tetrasomy 18p – Marie Primeau
Trisomy 18 – Jude Wolpert
Ring 18 – Tanis Nicholson
18p- – Katharine Newman
18q- – Katie Schilly