We are parents to Magnolia who was diagnosed with Tetrasomy 18p in 2020 at 10 months old. I remember feeling overwhelmed and scared. I felt like I had a million questions but also not knowing what to ask. Thankfully our geneticist gage us great advice. He told us to look into the Chromosome 18 Registry and Research Society. The support that we have received from other parents is priceless. From advice on medications and therapy to just seeing a real life example of what life might be like in the future. We have laughed and cried and pulled our hair out together. We find ourselves cheering on hundreds of "nieces and nephews" across the world. We're hoping to foster this community for the Northeast region however we can!
We are also parents to 3 boys: Quinton, an adult son who lives in Florida, 6 year old Lane and almost 2 year old Chance.
