Upcoming Regional Events
Current and Upcoming Fundraisers
Please join us on November 13th for a fundraiser party at The Paint Party Studio (69 Main St, Flemington, NJ). You will paint two wine glasses – with stems or without – and take with you when you leave.
This makes a great holiday gift or just a fun project for your own enjoyment!! Proceeds will benefit The Chromosome 18 Registry and Research Society. We have 36 spots that we would love to fill.
Invite your friends or family to come and enjoy two hours of fun and friends!! Snacks and drinks can be brought and enjoyed during the painting process!!
Please RSVP by clicking the link below.
Planning on hosting an individual fundraiser to benefit the Chromosome 18 Registry & Research Society? Please let us know by emailing our office at [email protected].
At our conference each year, we have certain families that always seem to shine. They come up with such innovative ways to raise money for the Registry and make such beautiful items to sell. For example:
Barbara Grossman (grandmother to Talia Grossman, 18q-) sold nutcrackers in honor of her late husband, Richard Grossman.
Deb Yocum (mother to Bryan Yocum, 18q-) sold ceramic tiles with the C18 logo on them. What a popular item!
Ian & Susan Moran (parents to Irene McKay Moran, 18p-) sold C18 temporary tattoos. All the young people loved that!
Elizabeth Cody (18q-), Marianna Kuorrti (mother to Kim Kuorrti, Tetrasomy 18p), Torrie Bryant (18q-), and Sarah Hunt (sister to Becky Hunt, 18p-) sold jewelry that they made throughout the year.
Seth Grossman (father to Talia Grossman, 18q-), had chromosome 18 t-shirts made to resemble the New York Yankee jerseys. We sold almost every one! What a great idea!
Past Successful Personal Fundraisers
Kickball – Robert English (C18) had a recent birthday and thought that since everyone “was dumping ice for a cause and Mike Rowe wasn’t because the organization involved in ice dumping had no idea what to do with that kind of support, he would follow Mike’s Facebook advice about each person choosing his own passion”. So Bob thought “a team has 9 players. 9 and 9 is 18- our Registry number! But everybody was playing baseball and I don’t. I want a kickball game for my birthday! Everybody will bring themselves to have fun. Like we do at Grandmas on weekends all summer. We can ask if anybody has some money for my birthday and to please give it to the Registry. The Registry has a plan for the money. We can give them Registry information and show my photo albums. We can do it every year for my birthday at Adams Playground field because it is fully accessible”. So, Bob’s mom, Marie, got permission to use the town field, sent invites to family, work associates, and scout members. Then she posted the invitation on Facebook. Fifteen people came. They played, they donated, and bob showed off his albums. What a great idea for a birthday party, Bob! We sure hope you had a wonderful birthday!
Aiden’s Smile Challenge – David and Tanis Nicholson (parents of Aiden Nicholson, Ring 18) were inspired by the Ice Bucket Challenge for ALS a few months ago and decided to create a fundraiser for their son. She invited everyone she was friends with on Facebook to this “Event” and it snowballed from there! David decided to match the money raised by donating from his business “Dave’s Do It Right Construction”. Tanis posted a picture of Aiden and wrote a brief synopsis of his condition. She said she was very hesitant to write too much on Facebook or post too many pictures for fear of Aiden being exploited. But, she had faith that people would be kind and generous. And, they were! Thank you David & Tanis for your remarkable efforts and for raising so much money for the Registry!
Run4Caroline – George Dunham (father to Caroline Dunham, C18) entered a Tough Mudder to raise a lot of money for the Registry. For those who are wondering, a Tough Mudder is an endurance event series in which participants attempt 10–12-mile-long military-style obstacle courses. Designed and created by British Special Forces to test mental as well as physical strength, obstacles often play on common human fears, such as fire, water, electricity and heights. Way to go George!
Botello Charity Golf Tournament – Stephen Botello (father to Josh and Cameron Botello, 18q-) held this year’s event at one of the Cape’s most beautiful and picturesque golf courses, The Ridge Club. Golfers were greeted by the legendary, professional hockey player, Bobby Orr where he signed autographs for everyone. For those of you not familiar with hockey, Bobby Orr is a former professional ice hockey player who played in the National Hockey League for ten seasons with the Boston Bruins and joined the Chicago Blacks Hawks for two more. Orr is widely acknowledged to be one of the greatest hockey players of all time! Thank you Stephen Botello for supporting the Registry year after year!
Super 18 T-Shirt – Robin McCabe (mother of Ryan Mayfield, 18q-) has partnered with bonfirefunds.com, a website that is 100% free, zero risk fundraising. All you do is design your own custom t-shirt, launch your fund and spread the word, meet your minimum goal by your deadline, and they print and ship the t-shirts and send the Registry the donations. Robin has held 2 campaigns so far and has raised a lot of money for the Registry. Thanks Robin! What a great idea!
CPK (California Pizza Kitchen) – Elizabeth Montgomery (mother of William Montgomery, 18p-) arranged the CPK in Wellesley MA to donate 20% of everyone’s purchase to the Registry! All C18 friends and families were welcome! Who doesn’t love CPK!
Garage Sale – Cindy Josefson (mother to Erik Josefson, C18) made some extra cash from a recent garage sale and donated her profit to the Registry. Thanks Cindy!
Irene McKay I Can Do That 5K – Let’s not forget our wonderful grandparents like Luther Young (grandfather to Irene McKay, 18p-) who held his first ever 5K. This man needs a standing ovation. Through his extraordinary determination and perseverance, he single-handedly put this race together. We are honored to have you in our Chromosome 18 Family.
Southwest Airlines Tickets for Time – Karla Baker (grandmother to Vivian Feagin, 18q-) works for Southwest Airlines and donates her time to the Registry so that she can get tickets for us. Thank you Karla for all your time! This keeps costs low at the office.
Pampered Chef Party – Melanie Gorrell (mother of Evan Gorrell, 18p-) throws a Pampered Chef Party and generously donates a portion of the proceeds to the Registry. Thank you Melanie for all your support!
Premier Jewelry Party – Melanie Gorrell (mother of Evan Gorrell, 18p-) also hosts Pampered Chef Parties and gives several pieces of beautiful jewelry to the Registry to use in either the Annual Conference or Golf Tournament’s Silent Auction. This generates quite a bit of money for the Registry each year. Thank you again, Melanie, for your continued support!
Birthday – In addition, Melanie’s daughter, Melia (sister of Evan Gorrell, 18p-), asked for donations to the Registry instead of birthday gifts. What an amazing sister and what an amazing human being who lives her life so selflessly for other people! Thank you Melia!
Fitness Boot Camp 4U – Monica McDivitt (mother of Samantha McDivitt, 18q-) set up a one-hour fitness class through fitnessbootcamp4u.com where proceeds were given to the Registry. Through this on-line registration, people could sign up for the class and get in shape! T-shirts were provided to all participants. Monica attends this class three days per week and her instructor donated his time to help her raise money. Monica, you rock!
Poppy Den Restaurant – Angelo Sosa (owner and chromosome 18 dad) graciously donated 10% of all food and drinks proceeds to the Registry. His restaurant is located in Las Vegas and serves Asian cuisine.
Grace Speaks – Todd and Nicole Leslie (parents of Grace Leslie, 18q-) have created a a 501(c)(3) tax exempt non-profit organization that is raising funds to help families pay for speech therapy in the Hancock County area and to bring awareness to the people and organizations that have helped them on their journey, in hopes that they can help someone else. For more information on their great work, please visit www.grace-speaks.org. Thank you Todd and Nicole for being a voice for these very special kids!
Charlotte’s 3rd Birthday Party – Liz Woodfield (mother of Charlotte Carlucci, Tetrasomy 18p) decided to ask for donations to the Registry in lieu of gifts this year. Thank you Liz and a very Happy Birthday to Charlotte! I bet you had a great one!
Happy 50th Birthday – Instead lieu gifts, Natalie Banton (mother to Noah Banton, 18p-) asked her friends and family to have donations made to the Registry! Thank you Natalie and Happy Birthday! We are so thankful to have you in our Chromosome 18 family!