Phantom Events

Each December, we host “Phantom Tea” and “Phantom Wine” parties across the nation to allow members, friends, and family to join together and raise funds for chromosome 18 research in hopes of making chromosome 18 conditions the first treatable chromosome abnormalities. During this time, we ask our members to invite their family and friends to a tea or wine party to help raise money to support chromosome 18 research.

Last year’s Phantom Tea and Phantom Wine events raised over $80,000 for Chromosome 18 Research!  As our largest and most important fundraiser of the year, this is a time that you can get involved to make an impact on families through research, education, and just helping families come together.  A huge thank you to the families that have supported us in past years, and we are looking forward to making 2017 Phantom Events our best year yet! Our achievable goal for this year is $120,000 and by carrying the momentum of last year’s Phantom Wine event, we can do it!

Phantom Tea:

Sunday, December 3, 2017

Celebrate in your home by inviting friends and families for an afternoon of tea and fundraising! We sip tea on the first Sunday of every December in honor of those we care about with a chromosome 18 conditions and to fund chromosome 18 research.

If your family or friends aren’t able to come in person, you can mail them an invitation and a tea bag to celebrate with you from afar! They return their donation to you by mail and once you’ve collected all donations from your event, mail the donations to the Chromosome 18 Registry & Research Society office.

Worried about making it the post office or finding time for an event in your schedule? You can also hold a virtual fundraiser by creating your own digital fundraising page here. Please contact the office at [email protected] or at 210.657.4968 with any questions.

Phantom Wine:

Sunday, December 3, 2017

Celebrate in your home by inviting friends and families for an evening of wine and fundraising! We enjoy a glass of wine on the first Sunday of every December in honor of those we care about with a chromosome 18 conditions and to fund chromosome 18 research.

If your family or friends aren’t able to come in person, you can mail them an invitation and a wine label to celebrate with you from afar! They return their donation to you by mail and once you’ve collected all donations from your event, mail the donations to the Chromosome 18 Registry & Research Society office.

Worried about making it the post office or finding time for an event in your schedule? You can also hold a virtual fundraiser by creating your own digital fundraising page here. Please contact the office at [email protected] or at 210.657.4968 with any questions.


Why Participate?

The vast majority of our funding comes directly from Chromosome 18 families and their friends and families who want to make a difference in the lives of every affected person and their loved ones. Without your generosity and support, we would not be able to carry out our research!

What Does Your Involvement Mean To the Registry?

By being involved in the Phantom Events, you help fund vital clinical research and support for families around the world.

$10 buys liquid Nitrogen for 1 tank for 1 week

$50 buys enrollment for a US family

$500 buys establishing cell lines for 1 family

$1000 buys 1 person’s microarray

$10,000 buys 1 comprehensive clinical evaluation


How to Participate?

By Mail:

All Chromosome 18 Registry & Research Society members will receive Phantom Tea and Wine invitations sent to their address in early November.  If you would like additional supplies sent, please contact [email protected] or call (210) 657-4968 and we will send you out additional invitations and supplies.

Online:

Interested in participating digitally? You can create your own fundraising platforms online by following the links below:


Want to print your own invitations?

Click on the links below to access Phantom Events Materials: