My name is Esperanza Bonequi Olmedo and my child’s name is Eduardo Padilla Bonequi. He was born March 7, 1996 and will soon be six years old. He goes to a normal school. He learns very quickly and his visits to the doctor are every four months.
When he was a baby, he couldn’t be feed. He didn’t receive stimulation because he had to be in only one position.
When we went to a hospital in Mexico City, the doctors made many studies to investigate what he had. When he was two years old, we knew that it was Tetrasomy 18p. Then we had to learn what Tetrasomy 18p was. The internet helped us and put us in contact with The Chromosome 18 Registry & Research Society. Since then things have changed because we center our attention on the characteristics of our children and we begin to understand what we had at home. Now he is trying cellular therapy, and we think that it is helping him very much. We can find here Italveron, which is a neuronal stimulation to help him a little more.
Esperanza Bonequi Olmedo