Regional & Syndrome Coordinator Support
Find Your Coordinator
MEMBERSHIP Benefit! Chromosome 18 members have access to the contact information of our wonderful Regional and Syndrome coordinators. Coordinator positions are filled by individuals who have volunteered to connect you with resources and events in your area or about your syndrome. They are parent volunteers who will help you to the best of their abilities.
Regional Coordinators
Regional coordinators try to have at least one social event every year in each US region, and these are a great way to get to know people in your area.
Syndrome Coordinators
Syndrome Coordinators can provide you with more syndrome specific information and resources, as well as share their own experience with Chromosome 18 syndromes
Chromosome 18 Regions
Regional Coordinators
Northwest – Joy Wilson
Southwest – Jessica Robold
Rocky Mountain – Jennifer & Kevin Borges
Texas Area – Angela Ashley
South Central – Bea Powell
Great Plains – Anama Family
Southeast – Allison & Jeremy Linman
Mid-Atlantic – Mike Fudala
Northeast – Jason Goodman
Great Lakes – Carrie Connolly
Canadian Coordinators – Lori Percy & Michelle Saunders
Bereavement Coordinator – Camille Hammond
Sibling Coordinator – Kendall Powell
Self-Advocate Coordinator – OPEN
Syndrome Coordinators
Tetrasomy 18p – Cristi Cain
Trisomy 18 – Jude Wolpert
Ring 18 – OPEN
18p- Camilla Downs
18q- Nichole McVicker
International Ambassadors
Africa – Christine Mutena
Mexico – Nancy Chavez
Brazil – Dalton Vilela
Members can contact the office at office@chromosome18.org to be connected with your appropriate coordinator.