With love, Holly Hood

The Power of 18 is back! This year, we’re doing a state-by-state competition, Help your state win while helping our members with: Essential medical management

In this article written by Dr. Cody, she discusses why we can’t just put back the missing piece of a chromosome.    Wouldn’t that just

(Pictured above from left to right: Maria Vazquez,Tessa Uvideo, Emily Haase) Hi! My name is Tessa Uviedo, and this summer, I am interning for Chromosome

Have you ever wondered what the Chromosome 18 Clinical Research Center is like? What goes on in the lab? How does Dr. Cody and her

“Its life-changing! You get to meet so many amazing families and make long-lasting friendships! You will find your tribe and it’s the best feeling ever!”

When most of you get your child’s diagnosis of a chromosome 18 abnormality, you probably felt alone at one time or another. The fear of

A question I’ve seen asked numerous times throughout the 17 or so years of being a member of The Registry. Now that we’ve got this great blog,

What are the chances of someone that has a Chromosome 18 abnormality to birth a babythat will also have the same syndrome?  The answer is

This weeks blog post is about how to advocate for people with a Chromosome 18 condition. When someone stares or asks about your child, how

Bea Powell, mom to Daniel, 18q- and our fabulous South Central Coordinator exudes joy, kindness, compassion, and love for her family and the Registry during

Ava Percy is one of our youngest Self-Advocates at age 13. While chatting over Zoom, she told me she prepared her answers and was happy