Chromosome 18 Blog
Latest Community News
Strategies for Making Job Openings More Accessible to People with Disabilities
Ensuring job opportunities for people with disabilities transcends mere legal compliance, aiming instead to nurture a diverse and inclusive workplace. By actively making these opportunities
Celebrating Rare Disease Day – Niki’s 18 Short Stories
By Niki Junker, a Chromosome 18 parent: Day 1: February 29 is Rare Diseases and Disorders Day. For the next 18 days, I will be

First Time Camp Experience
The 2023 conference in Columbus, OH, was my first and most certainly not my last. Our family decided I would go on my own this

Neurodivergent Entrepreneurs: Unlocking Potential and Starting a Successful Business
Written by: Ashley Taylor Being neurodivergent doesn’t mean one can’t be a successful entrepreneur. The unique abilities and perspectives that come with neurodivergence can often

Meet the New Clinical Research Center Staff
This month, Dr. Cody would like to introduce you to the new staff members at the Chromosome 18 Clinical Research Center. Learn more about Catherine

Clinical Research Center (CRC)
Clinical Research Center Video Library Learn how the research from the Chromosome 18 Clinical Research Center directly impacts families around the world. Playlist 1 Videos

The Power of 18 Challenge!
This year for Power of 18 we changed the challenge a bit. For 18 days, we got to see families sharing their challenges for Chromosome

Starfish Dash 2023 Recap
On April 29th 2023, Chromosome 18 Registry and Research Society held the 6th Annual Chromosome 18 Starfish Dash 5k Run/Walk & Health Fair in San

The Why and the How
Written by Meredith Moore, Chromosome 18 Board Member, Director at Large. Do you remember learning question words in school? They are for the curious. If

Pennies for Perri
The Poggio Family held their 1st Annual Pennies for Perri in California to support Chromosome 18 research. This event brought community together in honor of

Katrina Delaney Shares her Story – New Chromosome 18 Family.
When I was 20 weeks pregnant we found out that our daughter, Keira, had enlarged brain ventricles. As a first time mom, hearing this and
2022 Year In Review
Let me introduce myself for those of you that don’t know me. My name is Neale Parker and I am the CEO here at The