Why Join Chromosome 18?
You’re Not Alone, Join Today
Joining Chromosome 18 is more than just becoming part of a community; it’s finding a family that understands, supports, and empowers you. When you join us, you’re not alone on this journey. You gain access to a network of individuals and families who have walked similar paths, faced similar challenges, and celebrated similar triumphs. We’re here to share knowledge, provide comfort, and inspire hope. Together, we make a difference in the lives of those with chromosome 18 abnormalities. Join us, and let’s create a brighter future, one step at a time.
Welcome Video by Dr. Jannine Cody, PhD, Founder
Welcome Video by Dave Aldrup, President
Connections with Families
Events – in person and virtual (Community)
Step into the vibrant world of Step into the vibrant world of the Chromosome 18 community with a range of events crafted to bring us together, whether you’re near or far. Our annual conference and World C18 Day stand as pillars of connection and celebration, while our new member calls, research center tours, self-advocate, and parent connection events provide continuous engagement and learning. With 3-5 virtual events each month, accessible to all C18 members at no cost, there’s always an opportunity to forge friendships, exchange stories, and grow alongside other C18 families. Join us and be a part of a community that’s as committed to support as it is to progress.
Research Updates (Research)
Stay informed and up-to-date with the latest breakthroughs and insights in the field of chromosome 18 abnormalities through our Clinical Management Guides. These online publications from our Clinical Research Center offer valuable updates on research findings, treatment options, and advancements in medical care. Explore the guides to enhance your understanding and make informed decisions regarding your or your loved one’s health. Knowledge is power, and together, we’re advancing towards a brighter future for individuals with chromosome 18 abnormalities.
Online publications from our Clinical Research Center – Clinical Management Guides
Scientific publications produced by the Clinical Research Center. All are available as PDFs and many have lay summaries.
Research e-newsletters sent from our Clinical Research Center.
Stay in the know with our Research E-newsletters from the Clinical Research Center. These newsletters are your gateway to a world of valuable insights, updates, and discoveries in the realm of chromosome 18 abnormalities research. Join our community of knowledge seekers, caregivers, and advocates, and receive the latest research findings, clinical updates, and stories of hope delivered straight to your inbox. Together, we’re paving the way for a better future for individuals with chromosome 18 conditions.
Up to date CRC Newsletter are a valuable ongoing resource
Connect right away with coordinators who are experienced parents and a part of the registry.
Regional and Syndrome Coordinators within the C18 community are dedicated volunteers, often parents themselves, who provide personalized support and resources. They act as liaisons, connecting families to local events, medical resources, and other families facing similar journeys with Chromosome 18 abnormalities. These coordinators also offer syndrome-specific information, ensuring that every family receives tailored guidance and can fully participate in the community’s supportive network.
Private Facebook groups admission (Community)
Welcome to our Private Facebook and Syndrome Facebook Groups, your exclusive gateway to a wealth of information, knowledge, and connection within the Chromosome 18 community. Here, you’ll find a supportive network of individuals, families, and experts who understand the unique challenges and triumphs of chromosome 18 conditions. Share experiences, ask questions, and access valuable resources in a safe and compassionate space. Join us in these groups to connect, learn, and grow together, ensuring that no one faces their journey alone.
– (Private) closed Facebook groups for your geographical region to connect with families near you! Regional groups plan in person get togethers.
-(Private) closed Syndrome Facebook groups to connect with people who are experienced with the same syndrome. These groups are a great place to ask questions and mine for information!
-(Private) closed Facebook group for all members. All our closed Facebook groups are a great way to connect with other families. The comradery of others who understand makes the journey so much sweeter!
Monthly newsletters access (Education)
Discover the power of connection, knowledge, and support through our Monthly E-Newsletters from the Chromosome 18 Registry. Join our vibrant community of families, advocates, and individuals affected by chromosome 18 conditions, and stay informed about the latest news, events, and research updates. These newsletters are your key to staying connected, finding valuable resources, and never missing out on the opportunities to make a positive impact in the lives of those with chromosome 18 abnormalities. Together, we are building a brighter future.
Monthly e-newsletters from Chromosome 18 Registry