Rare Disease Day is on February 29th! Stay tuned for a short Facebook Live message from The Chromosome 18 staff on 2/29! Additionally, here are some wonderful resources and events happening for Rare Disease Day. -FDA’s Virtual Event for Rare Disease Day: -Rare Disease Day at NIH 2024: -Harvard and MIT Virtual Event for Rare […]
Rare Disease Day is on February 29th! Stay tuned for a short Facebook Live message from The Chromosome 18 staff on 2/29! Additionally, here are some wonderful resources and events happening for Rare Disease Day. -FDA’s Virtual Event for Rare Disease Day: -Rare Disease Day at NIH 2024: -Harvard and MIT Virtual Event for Rare […]
Join us Monday, March 18, 2024 at 6pm CT (US) for our monthly Facebook live, to talk to 2024 conference co-chairs, Mike and Kristen Yerys! Mike and Kristen will be answering conference questions, sharing about what is planned for conference and sharing more about who they are. Tune in to learn more about 2024 conference […]
Join us March 21st at 7pm CT (US) for a self-advocate game night! We will be playing Among Us, which can be downloaded for FREE on the iOS or Android Stores. Before the 21st, please download the Among Us game! Reach out to programs@chromosome18.org if you need any help or have questions. REGISTER HERE
Join us Thursday, March 28th at 6pm Central Time Zone (US) for a parents and caregivers night in, hosted by C18 parents and coordinators! Bring your favorite drinks or snacks to catch up and connect to other Chromosome 18 parents and caregivers! This event is free and over zoom. Register below by clicking the “register […]
© 2024 The Chromosome 18 Registry & Research Society
