January Chromosome 18 Clinical Research Center Virtual Tour

Want to attend a live tour of the Chromosome 18 Clinical Research Center? Are you curious about how Dr. Cody and her team perform genetic research? Do you have questions about the Clinical Research Center that you'd like to ask Dr. Cody? Save the date for 11:30 am CT on January 19, 2023 and join […]

Self-Advocate Pet Night!

Join Chromosome 18 staff members, Jessica Sanders and Amelie Simons to introduce us to your pets! Its going to be a great time to catch up with old friends and meet some new ones! Chromosome 18's Pet Night Zoom Call on Thursday January 26th at 6:00 pm CT! Join us on January 26th, 2023 at […]

Self-Advocate Pet Night!

Join Chromosome 18 staff members, Jessica Sanders and Amelie Simons to introduce us to your pets! Its going to be a great time to catch up with old friends and meet some new ones! Chromosome 18's Pet Night Zoom Call on Thursday January 26th at 6:00 pm CT! Join us on January 26th, 2023 at […]

Chromosome 18 Member Zoom Call- New Family Resource & Intro Call

We invite families new to Chromosome 18 to join us for an opportunity to connect and meet other parents at our next New Member Zoom Call on Tuesday, February 7th, 2023 at 7:00pm Central Time (US).   This is a great way to meet several people in our organization and feel connected right away. You […]

Chromosome 18 Member Zoom Call- New Family Resource & Intro Call

We invite families new to Chromosome 18 to join us for an opportunity to connect and meet other parents at our next New Member Zoom Call on Tuesday, February 7th, 2023 at 7:00pm Central Time (US).   This is a great way to meet several people in our organization and feel connected right away. You […]

18p- Syndrome Support Group

We invite you to join us for the 18p- Syndrome Support Group on Thursday, February 23rd at 4:30pm CT. Chromosome 18’s Member Zoom Call on February 23, 2023 at 4:30 pm CT with 18p- coordinator, Camilla Downs, and Great Plains regional coordinators, the Anama family. Join us on February 23, 2023 4:30 pm CT. Registration […]

18p- Syndrome Support Group

We invite you to join us for the 18p- Syndrome Support Group on Thursday, February 23rd at 4:30pm CT. Chromosome 18’s Member Zoom Call on February 23, 2023 at 4:30 pm CT with 18p- coordinator, Camilla Downs, and Great Plains regional coordinators, the Anama family. Join us on February 23, 2023 4:30 pm CT. Registration […]

Marvelous Martini Mixer!

The Shavano Park Tennis Club and Cynthia Parsons Realty Group requests the pleasure of your company at our 6th Annual Vodka Martini Mixer to benefit Chromosome 18 Registry and Research Society. Join us Saturday, February 25th from 5:30 PM - 7:30 PM. $45 per person and dress is casual attire. Please RSVP to (210) 479-9771 Martinis […]

Marvelous Martini Mixer!

The Shavano Park Tennis Club and Cynthia Parsons Realty Group requests the pleasure of your company at our 6th Annual Vodka Martini Mixer to benefit Chromosome 18 Registry and Research Society. Join us Saturday, February 25th from 5:30 PM - 7:30 PM. $45 per person and dress is casual attire. Please RSVP to (210) 479-9771 Martinis […]

Rare Disease Day 2023!

Rare Disease Day is on February 28th! Stay tuned for a short Facebook Live message from The Chromosome 18 staff on 2/28! Additionally, here are some wonderful resources and events happening for Rare Disease Day. -FDA's Virtual Event for Rare Disease Day: -Rare Disease Day at NIH 2023: -Harvard and MIT Virtual Event for Rare […]

Rare Disease Day 2023!

Rare Disease Day is on February 28th! Stay tuned for a short Facebook Live message from The Chromosome 18 staff on 2/28! Additionally, here are some wonderful resources and events happening for Rare Disease Day. -FDA's Virtual Event for Rare Disease Day: -Rare Disease Day at NIH 2023: -Harvard and MIT Virtual Event for Rare […]

18q- Syndrome Support Group

We invite you to join us for the 18q- Syndrome Support Group on Tuesday, March 14th at 6:00 pm CT. Chromosome 18’s Member Zoom Call on Tuesday, March 14 at 6:00 pm CT with 18q- coordinator, Nichole McVicker Join us on March 14, 2023 at 6:00 pm CT. Registration is required – please sign up […]

18q- Syndrome Support Group

We invite you to join us for the 18q- Syndrome Support Group on Tuesday, March 14th at 6:00 pm CT. Chromosome 18’s Member Zoom Call on Tuesday, March 14 at 6:00 pm CT with 18q- coordinator, Nichole McVicker Join us on March 14, 2023 at 6:00 pm CT. Registration is required – please sign up […]

Tetrasomy 18p Syndrome Support Group

We invite you to join us for the Tetrasomy 18p Syndrome Support Group on Sunday March 26, at 6:00pm CT. Chromosome 18’s Syndrome Support Group Zoom Call on March 26, 2023 at 6:00 pm CT with Vice President for Member Relations and Tetrasomy 18p parent, Liz Woodfield. Join us on March 26, 2023 6:00 pm […]

Tetrasomy 18p Syndrome Support Group

We invite you to join us for the Tetrasomy 18p Syndrome Support Group on Sunday March 26, at 6:00pm CT. Chromosome 18’s Syndrome Support Group Zoom Call on March 26, 2023 at 6:00 pm CT with Vice President for Member Relations and Tetrasomy 18p parent, Liz Woodfield. Join us on March 26, 2023 6:00 pm […]

Self-Advocate Karaoke Night!

We invite you to join us for the Self-Advocate Karaoke Night on Thursday, March 30th at 6:00pm CT. Chromosome 18’s Self-Advocate Karaoke Night on March 30, 2023 at 6:00 pm CT with Program Coordinator, Jessica Sanders. Join us on March 30, 2023 at 6:00 pm CT. Registration is required – please sign up below:  Click […]