Rare Disease Day is on February 28th! Stay tuned for a short Facebook Live message from The Chromosome 18 staff on 2/28! Additionally, here are some wonderful resources and events happening for Rare Disease Day. -FDA's Virtual Event for Rare Disease Day: -Rare Disease Day at NIH 2023: -Harvard and MIT Virtual Event for Rare […]

Rare Disease Day is on February 28th! Stay tuned for a short Facebook Live message from The Chromosome 18 staff on 2/28! Additionally, here are some wonderful resources and events happening for Rare Disease Day. -FDA's Virtual Event for Rare Disease Day: -Rare Disease Day at NIH 2023: -Harvard and MIT Virtual Event for Rare […]

We invite you to join us for the 18q- Syndrome Support Group on Tuesday, March 14th at 6:00 pm CT. Chromosome 18’s Member Zoom Call on Tuesday, March 14 at 6:00 pm CT with 18q- coordinator, Nichole McVicker Join us on March 14, 2023 at 6:00 pm CT. Registration is required – please sign up […]

We invite you to join us for the 18q- Syndrome Support Group on Tuesday, March 14th at 6:00 pm CT. Chromosome 18’s Member Zoom Call on Tuesday, March 14 at 6:00 pm CT with 18q- coordinator, Nichole McVicker Join us on March 14, 2023 at 6:00 pm CT. Registration is required – please sign up […]

March 18, 2023 is Trisomy Awareness Day. Wear your blue on March 18th!

March 18, 2023 is Trisomy Awareness Day. Wear your blue on March 18th!

Want to attend a live tour? Do you have questions about the Chromosome 18 Clinical Research Center? Save the date for 11:30 am CT on March 23, 2023 and join us for our in person tour!

Want to attend a live tour? Do you have questions about the Chromosome 18 Clinical Research Center? Save the date for 11:30 am CT on March 23, 2023 and join us for our in person tour!

We invite you to join us for the Tetrasomy 18p Syndrome Support Group on Sunday March 26, at 6:00pm CT. Chromosome 18’s Syndrome Support Group Zoom Call on March 26, 2023 at 6:00 pm CT with Vice President for Member Relations and Tetrasomy 18p parent, Liz Woodfield. Join us on March 26, 2023 6:00 pm […]

We invite you to join us for the Tetrasomy 18p Syndrome Support Group on Sunday March 26, at 6:00pm CT. Chromosome 18’s Syndrome Support Group Zoom Call on March 26, 2023 at 6:00 pm CT with Vice President for Member Relations and Tetrasomy 18p parent, Liz Woodfield. Join us on March 26, 2023 6:00 pm […]

We invite you to join us for the Self-Advocate Karaoke Night on Thursday, March 30th at 6:00pm CT. Chromosome 18’s Self-Advocate Karaoke Night on March 30, 2023 at 6:00 pm CT with Program Coordinator, Jessica Sanders. Join us on March 30, 2023 at 6:00 pm CT. Registration is required – please sign up below:  Click […]

We invite you to join us for the Self-Advocate Karaoke Night on Thursday, March 30th at 6:00pm CT. Chromosome 18’s Self-Advocate Karaoke Night on March 30, 2023 at 6:00 pm CT with Program Coordinator, Jessica Sanders. Join us on March 30, 2023 at 6:00 pm CT. Registration is required – please sign up below:  Click […]

Join us for an afternoon of Topgolf, comradery, spirit, and fun while raising awareness and money for our organization’s mission of helping people with chromosome 18 abnormalities overcome the obstacles they face so they may lead happy, healthy and productive lives. Chromosome 18’s Richmond Starfish Scramble on April 16, 2023 from 2:00-5:00PM.  Topgolf : 2308 westwood […]

Join us for an afternoon of Topgolf, comradery, spirit, and fun while raising awareness and money for our organization’s mission of helping people with chromosome 18 abnormalities overcome the obstacles they face so they may lead happy, healthy and productive lives. Chromosome 18’s Richmond Starfish Scramble on April 16, 2023 from 2:00-5:00PM.  Topgolf : 2308 westwood […]

April 18, 2023 is World Tetrasomy 18p Day.

April 18, 2023 is World Tetrasomy 18p Day.

We invite you to join us for the 18p- Syndrome Support Group on Thursday, April 20th at 8:00PM CT. Chromosome 18’s Member Zoom Call on April 20, 2023 at 8:00 PM CT with 18p- coordinator, Camilla Downs, and Great Plains regional coordinators, the Anama family. Join us on April 20, 2023 8:00 pm CT. Registration […]

We invite you to join us for the 18p- Syndrome Support Group on Thursday, April 20th at 8:00PM CT. Chromosome 18’s Member Zoom Call on April 20, 2023 at 8:00 PM CT with 18p- coordinator, Camilla Downs, and Great Plains regional coordinators, the Anama family. Join us on April 20, 2023 8:00 pm CT. Registration […]

Join us on April 29th, 2023 for Chromosome 18's 6th Annual Starfish Dash Run/Walk & Health Fair! This FREE, all-ages official Fiesta event take place at the UT Health campus. The morning will include lots of family-friendly activities including a health fair, cosplayers, and Fort Sam's own 323rd Army Band. Run, walk, or just come […]

Join us on April 29th, 2023 for Chromosome 18's 6th Annual Starfish Dash Run/Walk & Health Fair! This FREE, all-ages official Fiesta event take place at the UT Health campus. The morning will include lots of family-friendly activities including a health fair, cosplayers, and Fort Sam's own 323rd Army Band. Run, walk, or just come […]