Today kicks off Phantom Tea & Wine, our biggest fundraiser of the year! Check your mailboxes for Phantom materials arriving soon! Phantom Tea & Wine is Chromosome 18’s most important fundraiser of the year and it’s easy to get involved! This virtual celebration has been a tradition for over 25 years for our families and […]

Today kicks off Phantom Tea & Wine, our biggest fundraiser of the year! Check your mailboxes for Phantom materials arriving soon! Phantom Tea & Wine is Chromosome 18’s most important fundraiser of the year and it’s easy to get involved! This virtual celebration has been a tradition for over 25 years for our families and […]

Join us for a day-long Virtual Celebration and global get-together with the chromosome 18 family! - FREE to all members - Educational speakers, syndrome breakouts, Q&A with Dr. Cody, self-advocate show & tell, and a holiday dance party!  Australasian Connection Time - Sunday December 4th, 12:00pm - 1:00PM AEDT European Connection Time - Sunday December […]

Join us for a day-long Virtual Celebration and global get-together with the chromosome 18 family! - FREE to all members - Educational speakers, syndrome breakouts, Q&A with Dr. Cody, self-advocate show & tell, and a holiday dance party!  Australasian Connection Time - Sunday December 4th, 12:00pm - 1:00PM AEDT European Connection Time - Sunday December […]

Grab your hot cocoa, and join Chromosome 18 for an evening of fun with Santa! The event will start with a holiday story and end with pictures with Santa. We can’t wait to see you there! Join us on Sunday, December 11th, 2022 at 3:00 pm CT, registration is required – please register below: Click […]

Grab your hot cocoa, and join Chromosome 18 for an evening of fun with Santa! The event will start with a holiday story and end with pictures with Santa. We can’t wait to see you there! Join us on Sunday, December 11th, 2022 at 3:00 pm CT, registration is required – please register below: Click […]

Want to attend a live tour of the Chromosome 18 Clinical Research Center? Are you curious about how Dr. Cody and her team perform genetic research? Do you have questions about the Clinical Research Center that you'd like to ask Dr. Cody? Save the date for 11:30 am CT on January 19, 2023 and join […]

Want to attend a live tour of the Chromosome 18 Clinical Research Center? Are you curious about how Dr. Cody and her team perform genetic research? Do you have questions about the Clinical Research Center that you'd like to ask Dr. Cody? Save the date for 11:30 am CT on January 19, 2023 and join […]

Join Chromosome 18 staff members, Jessica Sanders and Amelie Simons to introduce us to your pets! Its going to be a great time to catch up with old friends and meet some new ones! Chromosome 18's Pet Night Zoom Call on Thursday January 26th at 6:00 pm CT! Join us on January 26th, 2023 at […]

Join Chromosome 18 staff members, Jessica Sanders and Amelie Simons to introduce us to your pets! Its going to be a great time to catch up with old friends and meet some new ones! Chromosome 18's Pet Night Zoom Call on Thursday January 26th at 6:00 pm CT! Join us on January 26th, 2023 at […]

We invite families new to Chromosome 18 to join us for an opportunity to connect and meet other parents at our next New Member Zoom Call on Tuesday, February 7th, 2023 at 7:00pm Central Time (US).   This is a great way to meet several people in our organization and feel connected right away. You […]

We invite families new to Chromosome 18 to join us for an opportunity to connect and meet other parents at our next New Member Zoom Call on Tuesday, February 7th, 2023 at 7:00pm Central Time (US).   This is a great way to meet several people in our organization and feel connected right away. You […]

We invite you to join us for the 18p- Syndrome Support Group on Thursday, February 23rd at 4:30pm CT. Chromosome 18’s Member Zoom Call on February 23, 2023 at 4:30 pm CT with 18p- coordinator, Camilla Downs, and Great Plains regional coordinators, the Anama family. Join us on February 23, 2023 4:30 pm CT. Registration […]

We invite you to join us for the 18p- Syndrome Support Group on Thursday, February 23rd at 4:30pm CT. Chromosome 18’s Member Zoom Call on February 23, 2023 at 4:30 pm CT with 18p- coordinator, Camilla Downs, and Great Plains regional coordinators, the Anama family. Join us on February 23, 2023 4:30 pm CT. Registration […]

The Shavano Park Tennis Club and Cynthia Parsons Realty Group requests the pleasure of your company at our 6th Annual Vodka Martini Mixer to benefit Chromosome 18 Registry and Research Society. Join us Saturday, February 25th from 5:30 PM - 7:30 PM. $45 per person and dress is casual attire. Please RSVP to (210) 479-9771 Martinis […]

The Shavano Park Tennis Club and Cynthia Parsons Realty Group requests the pleasure of your company at our 6th Annual Vodka Martini Mixer to benefit Chromosome 18 Registry and Research Society. Join us Saturday, February 25th from 5:30 PM - 7:30 PM. $45 per person and dress is casual attire. Please RSVP to (210) 479-9771 Martinis […]

Rare Disease Day is on February 28th! Stay tuned for a short Facebook Live message from The Chromosome 18 staff on 2/28! Additionally, here are some wonderful resources and events happening for Rare Disease Day. -FDA's Virtual Event for Rare Disease Day: -Rare Disease Day at NIH 2023: -Harvard and MIT Virtual Event for Rare […]

Rare Disease Day is on February 28th! Stay tuned for a short Facebook Live message from The Chromosome 18 staff on 2/28! Additionally, here are some wonderful resources and events happening for Rare Disease Day. -FDA's Virtual Event for Rare Disease Day: -Rare Disease Day at NIH 2023: -Harvard and MIT Virtual Event for Rare […]

We invite you to join us for the 18q- Syndrome Support Group on Tuesday, March 14th at 6:00 pm CT. Chromosome 18’s Member Zoom Call on Tuesday, March 14 at 6:00 pm CT with 18q- coordinator, Nichole McVicker Join us on March 14, 2023 at 6:00 pm CT. Registration is required – please sign up […]

We invite you to join us for the 18q- Syndrome Support Group on Tuesday, March 14th at 6:00 pm CT. Chromosome 18’s Member Zoom Call on Tuesday, March 14 at 6:00 pm CT with 18q- coordinator, Nichole McVicker Join us on March 14, 2023 at 6:00 pm CT. Registration is required – please sign up […]