We invite you to join us for the Tetrasomy 18p Syndrome Support Group on Sunday August 27, at 6:00pm CT. Join us for Chromosome 18’s Parent/Caregiver Support Group Zoom Call on August 27, 2023 at 6:00 pm CT with Vice President for Member Relations and Tetrasomy 18p parent, Liz Woodfield and Mid-Atlantic Coordinator and Tetrasomy […]

We invite families new to Chromosome 18 to join us for an opportunity to connect and meet other parents at our next New Member Zoom Call on Monday, August 28th, 2023 at 7:00pm Central Time (US).   This is a great way to meet several people in our organization and feel connected right away. You […]

We invite families new to Chromosome 18 to join us for an opportunity to connect and meet other parents at our next New Member Zoom Call on Monday, August 28th, 2023 at 7:00pm Central Time (US).   This is a great way to meet several people in our organization and feel connected right away. You […]

The Power of 18 is back for 2023! Small donations equal big things for Chromosome 18. We are asking you to find 18 people to donate $18, it's as simple as that! How much can we raise together?   A small donation can make a BIG difference!  What is the Power of 18? 2023 […]

The Power of 18 is back for 2023! Small donations equal big things for Chromosome 18. We are asking you to find 18 people to donate $18, it's as simple as that! How much can we raise together?   A small donation can make a BIG difference!  What is the Power of 18? 2023 […]

National Disability Voting Rights week begins September 12th-16th. Please join us September 12th for a Facebook Live to go over voter rights, accommodations for voting, and how to register to vote! WATCH HERE on September 12th at 6PM CT

National Disability Voting Rights week begins September 12th-16th. Please join us September 12th for a Facebook Live to go over voter rights, accommodations for voting, and how to register to vote! WATCH HERE on September 12th at 6PM CT

Today, September 18th, is Pitt Hopkins Awareness Day!

Today, September 18th, is Pitt Hopkins Awareness Day!

Join us Monday, September 18, 2023 at 6pm CT (US) for our monthly Facebook live, to learn from Katrina Delaney, Chromosome 18 parent and educator, to discuss IEP's (Individualized Education Plan), early learning, and different therapies. During the live, you can ask your questions directly! WATCH LIVE FROM OUR FACEBOOK

Join us Monday, September 18, 2023 at 6pm CT (US) for our monthly Facebook live, to learn from Katrina Delaney, Chromosome 18 parent and educator, to discuss IEP's (Individualized Education Plan), early learning, and different therapies. During the live, you can ask your questions directly! WATCH LIVE FROM OUR FACEBOOK

Want to attend a in person tour? Do you have questions about the Chromosome 18 Clinical Research Center? Save the date for September 21, 2023 at 11:30 am CT and join us for our in person tour!

Want to attend a in person tour? Do you have questions about the Chromosome 18 Clinical Research Center? Save the date for September 21, 2023 at 11:30 am CT and join us for our in person tour!

In 202, Brayden's Benefit: North of 80 Music Festival was created by friends and family of Brayden Blackwell, of Wellsboro, PA, to raise awareness on his Ring 18 diagnosis and other Chromosome 18 abnormalities. Proceeds raised benefit the Chromosome 18 Registry and Research Society, in honor of Brayden. Weekend includes live music from various genre […]

In 202, Brayden's Benefit: North of 80 Music Festival was created by friends and family of Brayden Blackwell, of Wellsboro, PA, to raise awareness on his Ring 18 diagnosis and other Chromosome 18 abnormalities. Proceeds raised benefit the Chromosome 18 Registry and Research Society, in honor of Brayden. Weekend includes live music from various genre […]

Join us September 28th at 7pm CT for the self-advocate paint night! Please reference the photo below for the colors and examples of brushes to have for the painting night. Supplies you will need: 1 canvas or large piece of sturdy paper - paper or canvas size recommended is 16x20 inches but, smaller will be […]

Join us September 28th at 7pm CT for the self-advocate paint night! Please reference the photo below for the colors and examples of brushes to have for the painting night. Supplies you will need: 1 canvas or large piece of sturdy paper - paper or canvas size recommended is 16x20 inches but, smaller will be […]

Join us Sunday, October 1st at 6PM CT for a special topic discussion on seizures with Chromosome 18 parent and coordinator, Cristi Cain. REGISTER HERE

Join us Sunday, October 1st at 6PM CT for a special topic discussion on seizures with Chromosome 18 parent and coordinator, Cristi Cain. REGISTER HERE

In Honor of the 19th Anniversary of the Golf Tournament, Chromosome 18 invites you to join us at for an evening of cocktails, hors d'oeuvres and auction. Thursday October 5, 2023 - 6:00pm - Oak Hills Country Club   Registered golfers and one guest will be admitted free. Those not registered for the golf tournament may […]