We are delighted to present the Twentieth Annual “Phantom Tea.”  Please join us in helping to make chromosome 18 conditions the first treatable chromosome abnormalities.  This is our largest annual fundraiser and we are hoping to make this our best year yet.

We are excited to announce a partnership with Fantasy Gives to offer fantasy football as a Registry fundraiser. Fantasy football has become a national sensation with 41.5 million participants last year. We can now offer fantasy football contests to generate revenue for the Registry. Contests are fun and simple for both experienced and novice players. […]

We are excited to announce a partnership with Fantasy Gives to offer fantasy football as a Registry fundraiser. Fantasy football has become a national sensation with 41.5 million participants last year. We can now offer fantasy football contests to generate revenue for the Registry. Contests are fun and simple for both experienced and novice players. […]

Dr. Ingo Helbig, Pediatric Neurologist from the Children's Hospital of Philadelphia, will be discussing the brain and how it works with normal genetics and how it may function when there are chromosome abnormalities.  This event is being held in Philadelphia, PA. Join us Saturday, October 10th from 6:00-9:00 P.M. as Dr. Ingo Helbig, Pediatric Neurologist from […]

Dr. Ingo Helbig, Pediatric Neurologist from the Children's Hospital of Philadelphia, will be discussing the brain and how it works with normal genetics and how it may function when there are chromosome abnormalities.  This event is being held in Philadelphia, PA. Join us Saturday, October 10th from 6:00-9:00 P.M. as Dr. Ingo Helbig, Pediatric Neurologist from […]

Over the past 19 years, Valero Texas Open has helped hundreds of San Antonio non-profits raise money through Birdies for Charity®; a no-cost program that gives 100% of the funds we raise back to our organization. This year, as in many years past, The Chromosome 18 Registry and Research Society is teaming up with Birdies […]

Over the past 19 years, Valero Texas Open has helped hundreds of San Antonio non-profits raise money through Birdies for Charity®; a no-cost program that gives 100% of the funds we raise back to our organization. This year, as in many years past, The Chromosome 18 Registry and Research Society is teaming up with Birdies […]

Mark your calendars! We’re going to have a regional gathering in the Dallas/Ft.Worth area on March 19th. We hope that those families that have been unable to make it to a Houston gathering can come and meet up with us in Mansfield.  Annemarie and Les Weatherhead have generously offered their home as a meeting place, […]

Mark your calendars! We’re going to have a regional gathering in the Dallas/Ft.Worth area on March 19th. We hope that those families that have been unable to make it to a Houston gathering can come and meet up with us in Mansfield.  Annemarie and Les Weatherhead have generously offered their home as a meeting place, […]

The Irene McKay I Can Do That Virtual 5K Run/Walk will be held from the 1st through the 30th of April, 2016. This is the third annual fundraiser for the Registry in honor of Irene McKay Moran, daughter of Susan Moran and granddaughter of Winifred and Luther Young.  The first event was an actual 5K held […]

The Irene McKay I Can Do That Virtual 5K Run/Walk will be held from the 1st through the 30th of April, 2016. This is the third annual fundraiser for the Registry in honor of Irene McKay Moran, daughter of Susan Moran and granddaughter of Winifred and Luther Young.  The first event was an actual 5K held […]

Our 23rd Annual Family Conference will be held from July 10th to July 13th, 2016 at the San Antonio Marriott Riverwalk in San Antonio, TX.  We hope that you can join us for what will surely be an exciting and informative experience!

Our 23rd Annual Family Conference will be held from July 10th to July 13th, 2016 at the San Antonio Marriott Riverwalk in San Antonio, TX.  We hope that you can join us for what will surely be an exciting and informative experience!

On July 23rd, you are cordially invited to an evening of dancing, silent auction, networking, and entertainment at the  23rd Annual Gala Dinner & Starfish Dance!

On July 23rd, you are cordially invited to an evening of dancing, silent auction, networking, and entertainment at the  23rd Annual Gala Dinner & Starfish Dance!

Join our Canadian families in celebrating a day a fun by the pool. All in the Ontario and surrounding areas are invited to join us.  The event is located about one and a half hours from Niagara Falls and 3 hours from Detroit. When: Saturday, July 23rd, 2016 at 2pm Where: 20 Alderwood Cres, Cambridge, Ontario […]

Join our Canadian families in celebrating a day a fun by the pool. All in the Ontario and surrounding areas are invited to join us.  The event is located about one and a half hours from Niagara Falls and 3 hours from Detroit. When: Saturday, July 23rd, 2016 at 2pm Where: 20 Alderwood Cres, Cambridge, Ontario […]

The Chromosome 18 Registry and Research Society (Europe) will host their 4th Family Conference on August 5th-7th at the Rome Park Marriott Hotel. Here is the link to put to book rooms in the hotel and the code to add in order to get our special rate.  The rate is being offered between August 2nd – August […]

The Chromosome 18 Registry and Research Society (Europe) will host their 4th Family Conference on August 5th-7th at the Rome Park Marriott Hotel. Here is the link to put to book rooms in the hotel and the code to add in order to get our special rate.  The rate is being offered between August 2nd – August […]

Saturday, Aug 6th - Galloping Lane Farm, Ringoes, NJ, 12-4pm - lunch picnic - sprinkler fun and hippo-therapy for smaller children.  RSVP to Liz Woodfield at lizdwoodfield@comcast.net