Starfish Dash – Rock ‘n’ Roll Denver

Join The Chromosome 18 Registry & Research Society's health-conscious fundraising event as part of the Starfish Fundraising Series! Our goal is to bring together health-minded people to run/walk to raise awareness and money for the Registry's mission. This Starfish Fundraising Series event is associated with the Denver Rock 'n' Roll Marathon Series. Denver Rock 'n' […]

Chromosome 18 Starfish Scramble – Top Golf San Antonio

Join Chromosome 18 Registry & Research Society's Starfish Scramble at Top Golf San Antonio!     WHEN:  Wednesday, October 25, 2017  6:00 PM – 9:00 PM   WHERE:  Top Golf San Antonio 5539 North Loop 1604 W   FEES: $60  Includes golf & light appetizers Clubs will be provided or you may bring your own! […]

Chromosome 18 Starfish Scramble – Top Golf San Antonio

Join Chromosome 18 Registry & Research Society's Starfish Scramble at Top Golf San Antonio!     WHEN:  Wednesday, October 25, 2017  6:00 PM – 9:00 PM   WHERE:  Top Golf San Antonio 5539 North Loop 1604 W   FEES: $60  Includes golf & light appetizers Clubs will be provided or you may bring your own! […]

Starfish Dash – Rock ‘n’ Roll San Antonio

Join The Chromosome 18 Registry & Research Society's health-conscious fundraising event as part of the Starfish Fundraising Series! Our goal is to bring together health-minded people to run/walk to raise awareness and money for the Registry's mission. This Starfish Fundraising Series event is associated with the San Antonio Rock 'n' Roll Marathon Series. San Antonio […]

Starfish Dash – Rock ‘n’ Roll San Antonio

Join The Chromosome 18 Registry & Research Society's health-conscious fundraising event as part of the Starfish Fundraising Series! Our goal is to bring together health-minded people to run/walk to raise awareness and money for the Registry's mission. This Starfish Fundraising Series event is associated with the San Antonio Rock 'n' Roll Marathon Series. San Antonio […]

Starfish Splash

Join Chromosome 18's health-conscious fundraising event, the Starfish Splash! Our goal is to bring together health-minded people to swim to raise awareness and money for Chromosome 18's mission. This Starfish Splash is an event that you can participate in wherever you are! As a participant in the Starfish Splash, you are responsible for finding a swimming […]

Starfish Splash

Join Chromosome 18's health-conscious fundraising event, the Starfish Splash! Our goal is to bring together health-minded people to swim to raise awareness and money for Chromosome 18's mission. This Starfish Splash is an event that you can participate in wherever you are! As a participant in the Starfish Splash, you are responsible for finding a swimming […]

Martini Fundraiser

The Shavano Park Tennis Club requests the pleasure of your company at our 5th Annual Cinco Martini Fundraiser on March 24, 2018, from 6:00 to 8:00 pm, to benefit the Chromosome 18 Registry & Research Society. An organization dedicated to helping people with chromosome 18 abnormalities overcome the obstacles they face so they may lead […]

Martini Fundraiser

The Shavano Park Tennis Club requests the pleasure of your company at our 5th Annual Cinco Martini Fundraiser on March 24, 2018, from 6:00 to 8:00 pm, to benefit the Chromosome 18 Registry & Research Society. An organization dedicated to helping people with chromosome 18 abnormalities overcome the obstacles they face so they may lead […]

Starfish Scramble

Join Chromosome 18 Registry & Research Society's Starfish Scramble at Topgolf San Antonio.   Together, we'll have an evening of golf, comradery, spirit, and fun while raising awareness and money for our organization's mission of helping people with chromosome 18 abnormalities overcome the obstacles they face so they may lead happy, healthy and productive lives. […]

Starfish Scramble

Join Chromosome 18 Registry & Research Society's Starfish Scramble at Topgolf San Antonio.   Together, we'll have an evening of golf, comradery, spirit, and fun while raising awareness and money for our organization's mission of helping people with chromosome 18 abnormalities overcome the obstacles they face so they may lead happy, healthy and productive lives. […]

Great Lakes Regional (Indoor) Picnic

Free Membership Here

Please join us for the Annual Chromosome 18 Registry & Research Society Great Lakes Regional (Indoor) Picnic!  We will be providing the food and beverages and will do our best to accommodate special dietary needs.  There will be indoor activities for the children, as well as time for parents to share experiences and ask questions.  Please RSVP […]

Great Lakes Regional (Indoor) Picnic

Free Membership Here

Please join us for the Annual Chromosome 18 Registry & Research Society Great Lakes Regional (Indoor) Picnic!  We will be providing the food and beverages and will do our best to accommodate special dietary needs.  There will be indoor activities for the children, as well as time for parents to share experiences and ask questions.  Please RSVP […]

Mid-Atlantic Picnic

Save the Date! The Mid-Atlantic picnic will be held on August 11th 12-4pm at Galloping Lane Farm in Ringoes, New Jersey. All are welcome. We would love to see some faces from New York and north too! See you at the conference first though! Or if you can’t make the conference here is a chance […]

Mid-Atlantic Picnic

Save the Date! The Mid-Atlantic picnic will be held on August 11th 12-4pm at Galloping Lane Farm in Ringoes, New Jersey. All are welcome. We would love to see some faces from New York and north too! See you at the conference first though! Or if you can’t make the conference here is a chance […]

Northeast Regional Get Together/Picnic

Save the Date! The Northeast Regional Get Together/Picnic will be held on September 1st from 11am-1pm at Bishops Field, Adam's Playground, Union Street, Peterborough, NH. All are welcome. The field is fully accessible, an accessible bathroom is available, and there is a fully fenced Children's playground! For more information, click here.

Northeast Regional Get Together/Picnic

Save the Date! The Northeast Regional Get Together/Picnic will be held on September 1st from 11am-1pm at Bishops Field, Adam's Playground, Union Street, Peterborough, NH. All are welcome. The field is fully accessible, an accessible bathroom is available, and there is a fully fenced Children's playground! For more information, click here.

Bob’s 41st Birthday & 5th Annual Kickball Fundraiser

We are hosting a fun family kickball game to benefit the Chromosome 18 Registry. The Registry is the only place to find hope for Tetrasomy 18p, Bob's rare genetic condition. Bob is the 3rd oldest documented person with Tetrasomy 18p! Donations go directly to research to provide information to doctors and families so the most […]