In 202, Brayden's Benefit: North of 80 Music Festival was created by friends and family of Brayden Blackwell, of Wellsboro, PA, to raise awareness on his Ring 18 diagnosis and other Chromosome 18 abnormalities. Proceeds raised benefit the Chromosome 18 Registry and Research Society, in honor of Brayden. Weekend includes live music from various genre […]

Join us September 28th at 7pm CT for the self-advocate paint night! Please reference the photo below for the colors and examples of brushes to have for the painting night. Supplies you will need: 1 canvas or large piece of sturdy paper - paper or canvas size recommended is 16x20 inches but, smaller will be […]

Join us September 28th at 7pm CT for the self-advocate paint night! Please reference the photo below for the colors and examples of brushes to have for the painting night. Supplies you will need: 1 canvas or large piece of sturdy paper - paper or canvas size recommended is 16x20 inches but, smaller will be […]

Join us Sunday, October 1st at 6PM CT for a special topic discussion on seizures with Chromosome 18 parent and coordinator, Cristi Cain. REGISTER HERE

Join us Sunday, October 1st at 6PM CT for a special topic discussion on seizures with Chromosome 18 parent and coordinator, Cristi Cain. REGISTER HERE

In Honor of the 19th Anniversary of the Golf Tournament, Chromosome 18 invites you to join us at for an evening of cocktails, hors d'oeuvres and auction. Thursday October 5, 2023 - 6:00pm - Oak Hills Country Club   Registered golfers and one guest will be admitted free. Those not registered for the golf tournament may […]

In Honor of the 19th Anniversary of the Golf Tournament, Chromosome 18 invites you to join us at for an evening of cocktails, hors d'oeuvres and auction. Thursday October 5, 2023 - 6:00pm - Oak Hills Country Club   Registered golfers and one guest will be admitted free. Those not registered for the golf tournament may […]

Join us for the very special 19th Anniversary of the Chromosome 18 Annual Golf Tournament on Friday October 6th, 2023 at the Quarry Golf Course. This fundraising event will support the critical mission of helping chromosome 18 kids and families. With the only dedicated Research Center in the world for chromosome 18 conditions based right here at UT Health […]

Join us for the very special 19th Anniversary of the Chromosome 18 Annual Golf Tournament on Friday October 6th, 2023 at the Quarry Golf Course. This fundraising event will support the critical mission of helping chromosome 18 kids and families. With the only dedicated Research Center in the world for chromosome 18 conditions based right here at UT Health […]

We are so excited to host a Southwest regional picnic this year in California at Yountville Community Park! This event will be Sunday, October 15th starting at 12PM in Yountville, CA. We are so excited and hope to see your family there! This event is a potluck style picnic, so please bring your favorite dish […]

We are so excited to host a Southwest regional picnic this year in California at Yountville Community Park! This event will be Sunday, October 15th starting at 12PM in Yountville, CA. We are so excited and hope to see your family there! This event is a potluck style picnic, so please bring your favorite dish […]

Join us Wednesday, October 18, 2023 at 6pm CT (US) for our monthly Facebook live, to hear from Self-Advocate, Shannon Baldwin, to talk about her college experience so far, future plans with disability advocacy and learn more about Shannon. WATCH LIVE FROM OUR FACEBOOK

Join us Wednesday, October 18, 2023 at 6pm CT (US) for our monthly Facebook live, to hear from Self-Advocate, Shannon Baldwin, to talk about her college experience so far, future plans with disability advocacy and learn more about Shannon. WATCH LIVE FROM OUR FACEBOOK

We invite you to join us for the 18p- and 18q- Parent/Caregiver  Support Group on Sunday, October 22nd at 6:00PM CT. This is a great opportunity to ask questions and get to know and connect with other Chromosome 18 families! Chromosome 18’s Member Zoom Call on October 22, 2023 at 6:00 PM CT with 18p- […]

We invite you to join us for the 18p- and 18q- Parent/Caregiver  Support Group on Sunday, October 22nd at 6:00PM CT. This is a great opportunity to ask questions and get to know and connect with other Chromosome 18 families! Chromosome 18’s Member Zoom Call on October 22, 2023 at 6:00 PM CT with 18p- […]

Put on your costumes and bring your dance moves for our virtual Halloween Costume Dance Party via Zoom! Stacey Gallardo will be hosting the event again this year! *Registration Required* Date: Monday, October 30, 2023 Time: 7:00pm CT Click HERE to Register!

Put on your costumes and bring your dance moves for our virtual Halloween Costume Dance Party via Zoom! Stacey Gallardo will be hosting the event again this year! *Registration Required* Date: Monday, October 30, 2023 Time: 7:00pm CT Click HERE to Register!

We invite families new to Chromosome 18 to join us for an opportunity to connect and meet other parents at our next New Member Zoom Call on Monday, November 13th, 2023 at 3:00pm Central Time (US). This is a great way to meet several people in our organization and feel connected right away. You will […]

We invite families new to Chromosome 18 to join us for an opportunity to connect and meet other parents at our next New Member Zoom Call on Monday, November 13th, 2023 at 3:00pm Central Time (US). This is a great way to meet several people in our organization and feel connected right away. You will […]

Join us November 18th at 6pm CT to learn more about phantom tea and wine from Tam Aldrup and Katie Bailey. You can watch it HERE   Learn more about Phantom Tea and Wine HERE