Today, September 18th, is Pitt Hopkins Awareness Day!

Today, September 18th, is Pitt Hopkins Awareness Day!

Join us Monday, September 18, 2023 at 6pm CT (US) for our monthly Facebook live, to learn from Katrina Delaney, Chromosome 18 parent and educator, to discuss IEP's (Individualized Education Plan), early learning, and different therapies. During the live, you can ask your questions directly! WATCH LIVE FROM OUR FACEBOOK

Join us Monday, September 18, 2023 at 6pm CT (US) for our monthly Facebook live, to learn from Katrina Delaney, Chromosome 18 parent and educator, to discuss IEP's (Individualized Education Plan), early learning, and different therapies. During the live, you can ask your questions directly! WATCH LIVE FROM OUR FACEBOOK

Want to attend a in person tour? Do you have questions about the Chromosome 18 Clinical Research Center? Save the date for September 21, 2023 at 11:30 am CT and join us for our in person tour!

Want to attend a in person tour? Do you have questions about the Chromosome 18 Clinical Research Center? Save the date for September 21, 2023 at 11:30 am CT and join us for our in person tour!

In 202, Brayden's Benefit: North of 80 Music Festival was created by friends and family of Brayden Blackwell, of Wellsboro, PA, to raise awareness on his Ring 18 diagnosis and other Chromosome 18 abnormalities. Proceeds raised benefit the Chromosome 18 Registry and Research Society, in honor of Brayden. Weekend includes live music from various genre […]

In 202, Brayden's Benefit: North of 80 Music Festival was created by friends and family of Brayden Blackwell, of Wellsboro, PA, to raise awareness on his Ring 18 diagnosis and other Chromosome 18 abnormalities. Proceeds raised benefit the Chromosome 18 Registry and Research Society, in honor of Brayden. Weekend includes live music from various genre […]

Join us September 28th at 7pm CT for the self-advocate paint night! Please reference the photo below for the colors and examples of brushes to have for the painting night. Supplies you will need: 1 canvas or large piece of sturdy paper - paper or canvas size recommended is 16x20 inches but, smaller will be […]

Join us September 28th at 7pm CT for the self-advocate paint night! Please reference the photo below for the colors and examples of brushes to have for the painting night. Supplies you will need: 1 canvas or large piece of sturdy paper - paper or canvas size recommended is 16x20 inches but, smaller will be […]

Join us Sunday, October 1st at 6PM CT for a special topic discussion on seizures with Chromosome 18 parent and coordinator, Cristi Cain. REGISTER HERE

Join us Sunday, October 1st at 6PM CT for a special topic discussion on seizures with Chromosome 18 parent and coordinator, Cristi Cain. REGISTER HERE

In Honor of the 19th Anniversary of the Golf Tournament, Chromosome 18 invites you to join us at for an evening of cocktails, hors d'oeuvres and auction. Thursday October 5, 2023 - 6:00pm - Oak Hills Country Club   Registered golfers and one guest will be admitted free. Those not registered for the golf tournament may […]

In Honor of the 19th Anniversary of the Golf Tournament, Chromosome 18 invites you to join us at for an evening of cocktails, hors d'oeuvres and auction. Thursday October 5, 2023 - 6:00pm - Oak Hills Country Club   Registered golfers and one guest will be admitted free. Those not registered for the golf tournament may […]

Join us for the very special 19th Anniversary of the Chromosome 18 Annual Golf Tournament on Friday October 6th, 2023 at the Quarry Golf Course. This fundraising event will support the critical mission of helping chromosome 18 kids and families. With the only dedicated Research Center in the world for chromosome 18 conditions based right here at UT Health […]

Join us for the very special 19th Anniversary of the Chromosome 18 Annual Golf Tournament on Friday October 6th, 2023 at the Quarry Golf Course. This fundraising event will support the critical mission of helping chromosome 18 kids and families. With the only dedicated Research Center in the world for chromosome 18 conditions based right here at UT Health […]

We are so excited to host a Southwest regional picnic this year in California at Yountville Community Park! This event will be Sunday, October 15th starting at 12PM in Yountville, CA. We are so excited and hope to see your family there! This event is a potluck style picnic, so please bring your favorite dish […]

We are so excited to host a Southwest regional picnic this year in California at Yountville Community Park! This event will be Sunday, October 15th starting at 12PM in Yountville, CA. We are so excited and hope to see your family there! This event is a potluck style picnic, so please bring your favorite dish […]

Join us Wednesday, October 18, 2023 at 6pm CT (US) for our monthly Facebook live, to hear from Self-Advocate, Shannon Baldwin, to talk about her college experience so far, future plans with disability advocacy and learn more about Shannon. WATCH LIVE FROM OUR FACEBOOK

Join us Wednesday, October 18, 2023 at 6pm CT (US) for our monthly Facebook live, to hear from Self-Advocate, Shannon Baldwin, to talk about her college experience so far, future plans with disability advocacy and learn more about Shannon. WATCH LIVE FROM OUR FACEBOOK