We invite families new to Chromosome 18 to join us for an opportunity to connect and meet other parents! You are invited to a Zoom meeting. When: Nov 13, 2020 07:00 PM Central Time (US and Canada) Register in advance for this meeting: https://us02web.zoom.us/meeting/register/tZwvfuGtqD4uG9xLNz7wNFYiAsnn5zEiBg_O After registering, you will receive a confirmation email containing information about […]

Please join special guest and award-winning speaker Brandon Bosma as he shares his journey with Trisomy 18 with us for Facebook Live November 18th at 5pm Mountain Time / 6pm Central Time! Join us on Facebook Live at https://www.facebook.com/chromosome18Registry.

Please join special guest and award-winning speaker Brandon Bosma as he shares his journey with Trisomy 18 with us for Facebook Live November 18th at 5pm Mountain Time / 6pm Central Time! Join us on Facebook Live at https://www.facebook.com/chromosome18Registry.

Want to attend a live tour? Do you have questions about the Chromosome 18 Clinical Research Center? Save the date for 11:30 am CDT on November 19, and join us for our monthly tour. We can't wait to show you around and answer your questions. For more information email office@chromosome18.org! You are invited to a […]

Want to attend a live tour? Do you have questions about the Chromosome 18 Clinical Research Center? Save the date for 11:30 am CDT on November 19, and join us for our monthly tour. We can't wait to show you around and answer your questions. For more information email office@chromosome18.org! You are invited to a […]

Grab your hot cocoa, and join Chromosome 18 for an evening of fun with Santa! The event will start with a holiday story and end with pictures with Santa. A digital copy of your photo will be sent to you following the event. We can't wait to see you there! You are invited to a […]

Grab your hot cocoa, and join Chromosome 18 for an evening of fun with Santa! The event will start with a holiday story and end with pictures with Santa. A digital copy of your photo will be sent to you following the event. We can't wait to see you there! You are invited to a […]

Make your own Phantom Tea and Phantom Wine fundraising pages online now! Each December, we host “Phantom Tea” and “Phantom Wine” parties across the nation to allow members, friends, and family to join together and raise funds for chromosome 18 research in hopes of making chromosome 18 conditions the first treatable chromosome abnormalities. During this time, we ask our […]

Make your own Phantom Tea and Phantom Wine fundraising pages online now! Each December, we host “Phantom Tea” and “Phantom Wine” parties across the nation to allow members, friends, and family to join together and raise funds for chromosome 18 research in hopes of making chromosome 18 conditions the first treatable chromosome abnormalities. During this time, we ask our […]

Having trouble getting your affected loved one to do what you'd like them to? Are you at your wits end about what triggers them and why? Please join Behavior Management expert Chris Heimerl as he gives us a "Mmmmmmenu" of specific strategies that will help with Behavior Management! You are invited to a Zoom meeting. […]

Having trouble getting your affected loved one to do what you'd like them to? Are you at your wits end about what triggers them and why? Please join Behavior Management expert Chris Heimerl as he gives us a "Mmmmmmenu" of specific strategies that will help with Behavior Management! You are invited to a Zoom meeting. […]

Please join Chromosome 18 Director of Operations, Emi Behan, for our year-end wrap-up on Facebook Live. Join us on December 18 at 6:00 pm CT, no registration is required: https://www.facebook.com/chromosome18Registry  

Please join Chromosome 18 Director of Operations, Emi Behan, for our year-end wrap-up on Facebook Live. Join us on December 18 at 6:00 pm CT, no registration is required: https://www.facebook.com/chromosome18Registry  

Please join our very own Dr. Paul Niolet as he delivers his opinion and important information regarding the COVID-19 vaccine. Dr. Niolet is an Allergy & Immunology Specialist as well as a parent of a child affected with 18p-. Join us on January 13 at 7:00 pm CT, no registration is required:  https://www.facebook.com/chromosome18Registry

Please join our very own Dr. Paul Niolet as he delivers his opinion and important information regarding the COVID-19 vaccine. Dr. Niolet is an Allergy & Immunology Specialist as well as a parent of a child affected with 18p-. Join us on January 13 at 7:00 pm CT, no registration is required:  https://www.facebook.com/chromosome18Registry

Having trouble getting your affected loved one to do what you'd like them to? Are you at your wits end about what triggers them and why? Please join Behavior Management expert Chris Heimerl as he answers your questions about behavior management. Please submit questions ahead of time at http://bit.ly/c18behavior. You are invited to a Zoom […]

Having trouble getting your affected loved one to do what you'd like them to? Are you at your wits end about what triggers them and why? Please join Behavior Management expert Chris Heimerl as he answers your questions about behavior management. Please submit questions ahead of time at http://bit.ly/c18behavior. You are invited to a Zoom […]

Please join Self-Advocate, David Aldrup, Jr., for January's Facebook Live! Join us on January 18 at 6:00 pm CT, no registration is required:  https://www.facebook.com/chromosome18Registry  

Please join Self-Advocate, David Aldrup, Jr., for January's Facebook Live! Join us on January 18 at 6:00 pm CT, no registration is required:  https://www.facebook.com/chromosome18Registry  

Want to attend a live tour? Do you have questions about the Chromosome 18 Clinical Research Center? Save the date for 11:30 am CDT on January 21, and join us for our bi-monthly tour. We can't wait to show you around and answer your questions. For more information email office@chromosome18.org! You are invited to a […]