Marvelous Martini Mixer!

The Shavano Park Tennis Club hosts and requests the pleasure of your company at our 7th Annual Vodka Martini Mixer to benefit Chromosome 18 Registry and Research Society. Thank you to Shavano Park Tennis Club and OnPoint Plus for sponsoring this event! Join us Saturday, February 10th from 5:30 PM – 7:30 PM. $45 per […]

Marvelous Martini Mixer!

The Shavano Park Tennis Club hosts and requests the pleasure of your company at our 7th Annual Vodka Martini Mixer to benefit Chromosome 18 Registry and Research Society. Thank you to Shavano Park Tennis Club and OnPoint Plus for sponsoring this event! Join us Saturday, February 10th from 5:30 PM – 7:30 PM. $45 per […]

Spanish Speaking Family Connection Event/Evento de conexión familiar de habla hispana

¡Únase a otras familias del cromosoma 18 en el área de México para una reunión vía zoom! Únase a nosotros el 15 de febrero a las 7 p. m., hora central, con nuestra nueva embajadora de México, Nancy Chávez. Esta será una gran oportunidad para conectarse con otras familias del Cromosoma 18 y esta convocatoria […]

February Facebook Live

Join us Sunday, February 18, 2024 at 6pm CT (US) for our monthly Facebook live, to talk to Dr. Brian Faux, who is a pediatric neurologist. Dr. Brian will be answering questions and during the live, you can ask your questions directly! WATCH LIVE FROM OUR FACEBOOK

February Facebook Live

Join us Sunday, February 18, 2024 at 6pm CT (US) for our monthly Facebook live, to talk to Dr. Brian Faux, who is a pediatric neurologist. Dr. Brian will be answering questions and during the live, you can ask your questions directly! WATCH LIVE FROM OUR FACEBOOK

Chromosome 18 Siblings Event

Join us February 21, 2024 at 5pm CT/6pm ET for a Chromosome 18 Sibling Connection Event! This is open to all C18 siblings and will be hosted by sibling coordinator, Kendall Powell. This event is free, and open to siblings only! Join us Wednesday, February 21st for a time to connect, chat and be apart […]

Chromosome 18 Siblings Event

Join us February 21, 2024 at 5pm CT/6pm ET for a Chromosome 18 Sibling Connection Event! This is open to all C18 siblings and will be hosted by sibling coordinator, Kendall Powell. This event is free, and open to siblings only! Join us Wednesday, February 21st for a time to connect, chat and be apart […]

Valentine’s Soiree!

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Join us for a love-filled evening, music, and delightful company will make your heart skip a beat and all for wonderful causes! GET YOUR TICKETS HERE!

Valentine’s Soiree!

interactive-calendar

Join us for a love-filled evening, music, and delightful company will make your heart skip a beat and all for wonderful causes! GET YOUR TICKETS HERE!

Rare Disease Day 2024!

Rare Disease Day is on February 29th! Stay tuned for a short Facebook Live message from The Chromosome 18 staff on 2/29! Additionally, here are some wonderful resources and events happening for Rare Disease Day. -FDA’s Virtual Event for Rare Disease Day:  -Rare Disease Day at NIH 2024: -Harvard and MIT Virtual Event for Rare […]

Rare Disease Day 2024!

Rare Disease Day is on February 29th! Stay tuned for a short Facebook Live message from The Chromosome 18 staff on 2/29! Additionally, here are some wonderful resources and events happening for Rare Disease Day. -FDA’s Virtual Event for Rare Disease Day:  -Rare Disease Day at NIH 2024: -Harvard and MIT Virtual Event for Rare […]

March Facebook Live

Join us Monday, March 18, 2024 at 6pm CT (US) for our monthly Facebook live, to talk to 2024 conference co-chairs, Mike and Kristen Yerys! Mike and Kristen will be answering conference questions, sharing about what is planned for conference and sharing more about who they are. Tune in to learn more about 2024 conference […]

Self-Advocate Game Night!

Join us March 21st at 7pm CT (US) for a self-advocate game night! We will be playing Among Us, which can be downloaded for FREE on the iOS or Android Stores. Before the 21st, please download the Among Us game! Reach out to programs@chromosome18.org if you need any help or have questions. REGISTER HERE

Parents Night In!

Join us Thursday, March 28th at 6pm Central Time Zone (US) for a parents and caregivers night in, hosted by C18 parents and coordinators! Bring your favorite drinks or snacks to catch up and connect to other Chromosome 18 parents and caregivers! This event is free and over zoom. Register below by clicking the “register […]

Meet and Talk with Dr. Cody at the Clinical Research Center

Join for a wonderful chance to meet and chat with Chromosome 18's founder Dr. Jannine Cody! Join us to tour the Clinical Research Center, led by Dr. Cody and ask your questions directly to her from the comfort of your home. Join in on Thursday, April 25th at 11:30am CT (US) to talk to Dr. […]

7th Annual Starfish Dash 5K Run/Walk & Health Fair

Join us on April 27th, 2024 for Chromosome 18’s 7th Annual Starfish Dash Run/Walk & Health Fair! This FREE, all-ages official Fiesta event take place at the UT Health campus. The morning will include lots of family-friendly activities including a health fair, cosplayers, and Fort Sam’s own 323rd Army Band. Run, walk, or just come […]

Chromosome 18 Bingo Night!

Join us for our Chromosome 18 Family Bingo Night! Cards will be provided and sent to your email before, please print and have these ready to go on April 30th.  There are many chances to win prizes! Please join us Tuesday, April 30th at 7 PM CT for a fun night of bingo over zoom! […]

Spanish Speaking Family Connection Event/Evento de conexión familiar de habla hispana

¡Únete a otras familias del cromosoma 18 en el área de México para una reunión vía zoom! Acompáñanos el 9 de mayo a las 7pm, hora central, con nuestra embajadora de México, Nancy Chávez. Esta será una gran oportunidad para conectarse con otras familias del Cromosoma 18 y esta convocatoria será en español. Comuníquese con […]

Chromosome 18 Member Zoom Call – New Family Resource & Intro Call

We invite our families new to Chromosome 18 to join us for an opportunity to connect and meet other parents at our next New Member Zoom Call on Thursday, May 16th, 2024 at 7:00pm Central Time (US). This is a great way to meet several key people in our organization, learn more about Chromosome 18, […]