Chromosome 18 2021 Virtual Conference – Archive

 

 

 

 

 

 

 

Closer Than Ever Conference Summary

Chromosome 18s Closer Than Ever Virtual Conference was a huge success! We are so glad that we could bring our families around the world together in this brand new format. As we couldn’t come together in person, we provided a way for our families to connect through virtual sessions and activities. Linked below are recordings of most of the sessions offered throughout the week.

We want to say a huge THANK YOU to the experts who shared their invaluable expertise & information during the sessions, physicians who help improve the quality of life for our families, members from around the world that joined, and the volunteers & staff that put their time, dedication, and passion into making the conference so inspiring.

 

Helpful Links:

Click here to access Conference Session Links!

 

 

Recorded Sessions

 

For medical questions about this talk, please contact Annice Hill at HillA3@uthscsa.edu. For all other questions, please contact office@chromosome18.org.

To see the below videos at full-size, please click the title of the embedded video (directly above the play button) to open in YouTube, or click “YouTube” on the bottom right once the video is playing to view the video at full-size.

 

 

 

Welcome to Conference!
Monday, July 12 @ 10:00 AM CDT

 

 

ABA Therapy, Cindy Mrotek
Monday, July 12 @  12:00 PM CDT

    

 

 

Autism/Creating Relationships, Jaclyn Hunt
Tuesday , July 13 @ 1:00 PM CDT

 

 

 

 

 

Autoimmune Disorders, Dr.Brooks
Monday, July 12 @ 4:45 PM CDT

 

 

CH18 Dance party
Tuesday, July 13 @ 6:30 PM CDT
Unfortunately, our CH18 Dance Party is not available as a recording and was only available to watch live.

 

 

COVID 19 Updates, Dr. Niolet
Monday, July 12 @ 1:00 PM CDT

 

 

 

 

 

 

CRC Virtual Tour
Tuesday, July 14 @ 3:00 PM CDT

 


Endocrine Issues, Dr.Hale

Tuesday, July 13 @ 12:00 PM CDT

 

 

Genetics, Dena “DNA” Goldberg
Tuesday, July 13 @ 3:00 PM CDT

 

 

 

 

 

 

 

Health Literacy, Dr. Manganello
Monday, July 12 @ 12:00 PM CDT

 

 

Look, Cook, & Eat, Susan Hoss
Tuesday, July 13 @ 12:00 PM

 

 

Magic Show, Mike Perello
Tuesday, July 13 @ 3:00 PM CDT
Unfortunately, our Magic Show is not available as a recording and was only available to watch live.

 

 

 

 

 

 

Managing Challenging Behavior, Dr. Jonathan Mason
Monday, July 12 @ 4:45 PM CDT

 

 

Movement Disorders, Dr. Atkinson
Monday, July 12 @ 12:00 PM CDT

 

 

OCD, Dr. Larson
Monday, July 12 @ 1:00 PM

 

 

 

 

 

 

Outdoor Occupational Therapy, Kristen Earl & Teague Grubel
Tuesday, July 13 @ 1:00 PM CDT

 

 

Positive Exposure, Rick Guidotti
Monday, July 12 @ 10:45 AM CDT

 

 

Princess Sing-Along, Morgan Kelso
Tuesday, July 13 @ 10:00 AM CDT
Unfortunately, our Princess Sing-Along Dance Party is not available as a recording and was only available to watch live.

 

 

 

 

 

 

Puberty: The When, What, and How, Kate E Reynolds
Tuesday, July 13 @ 11:45 AM CDT

 

 

Regional Breakouts
Monday, July 12 @ 5:45 PM CDT
Unfortunately, our Regional Breakouts Dance Party is not available as a recording and was only available to watch live.

 

 

Research Updates, Dr. Cody & Dr. Hale
Monday, July 13 @ 2:00 PM CDT

 

 

 

 

 

 

Roundtable Q&A, Drs. Cody, Hale, Larson, & Manganello
Tuesday, July 13 @ 3:15 PM CDT

 

 

Self-Advocate Panel (Live)
Tuesday, July 13 @ 2:00 PM CDT
Unfortunately, our Self-Advocate Panel is not available as a recording and was only available to watch live.

 

 

Sibling Panel (Live)
Tuesday, July 13 @ 4:45 PM CDT
Unfortunately, our Sibling Panel is not available as a recording and was only available to watch live.

 

 

 

 

 

 

Social Security/Disability, John McGing
Monday, July 12 @ 1:00 PM CDT

 

 

Special Needs Family Protection, Amanda Batsche, Esq.
Monday, July 12 @ 5:45 PM CDT

 

 

Syndrome Breakouts
Monday, July 12 @ 2:00 PM CDT
Unfortunately, our Syndrome Breakouts is not available as a recording and was only available to watch live.

 

 

 

 

 

 

Therapeutic Music, Jennifer Sanders
Monday, July 12 @ 4:45 PM CDT

 

 

Yoga, Ann Newstead
Monday, July 12 @ 3:45 PM CDT
Unfortunately, our Yoga is not available as a recording and was only available to watch live.

 

 

ASL Activity, Gigi Gabbour
Monday, July 12 @ 5:45 PM CDT

 

 

 

 

 

 

Meet the Presenters

 

Want to learn more about the presenters who took part in the 2020 Closer Than Ever – Chromosome 18 Virtual Conference? Learn more by reading their biographies here.

 

 

 

 

Help Keep The Virtual Conference Free – Donate Today
Chromosome 18 is excited to share this opportunity with families around the world! To ensure as many people have access to the virtual conference as possible, we are making registration for the live videos FREE! However, Chromosome 18 needs your financial support to offer programs like this. If you would like to donate, please do so below: