18q Families
The 18q families’ stories provide not only a source of empathy and understanding for others in similar situations but also serve as an educational resource for the wider community. Their personal accounts help demystify the condition, bringing awareness and insight into the realities of life with a genetic abnormality.
meet the
18q Families
Some of our members would like to share their stories.
In the three and a half years that I had been a mother, I think I could count on one hand the number...More
Welcome to Holland. It’s the name of an essay many of you are familiar with and one that has certa...More
Sam was nearly 2 years-old when she was diagnosed with an 18q- deletion. The geneticist told my husb...More
My name is Lisa Mazur and I am the mother of a 9-year-old little girl with a Chromosome 18q- deletio...More
It was 2003 and I was fresh out of college. I decided to move to MD after graduating and found a job...More
I am Katie Bailey and my husband Dan and I live in Olathe Kansas with our 4 children. We have Blake,...More
“Forward, Together, Forward”, my alma mater, Northern Illinois University’s rally call in the ...More