Chromosome 18 Overview
Mission Statement: Chromosome 18’s mission is to help people with chromosome 18 abnormalities overcome the obstacles they face so they may lead healthy and productive lives.
The Chromosome 18 Registry & Research Society is an advocacy organization composed primarily of the parents of individuals with a chromosome 18 abnormality. We consist off our separate organizations located in the United States, Canada, Australasia, and Europe, all with a common mission: To help people with chromosome 18 abnormalities overcome the obstacles they face so they may lead happy, healthy, and productive lives. We are proud to count among our members those who are affected by a chromosome 18 abnormality, extended family members, and professionals. Membership is free and open to any interested person. We are a 501(c)(3) non-profit, tax-exempt public charity.
About Chromosome 18
- Only dedicated clinical research center in the world for Chromosome 18 conditions.
- Global leader in community, education, 30+ years of research for C18 conditions. Learn more here in our Annual Report.
- We currently serve families from over 30 countries and spanning 6 continents.
- Chromosome 18 serves over 4,500 families in the United States and over 2,000 families internationally.
- More than 700 families affected by chromosome 18 conditions enrolled in chromosome 18 studies.
- In 2023, Chromosome 18 welcomed over 146 new families to the registry from 30 different countries around the world.