18q Syndrome Video Library
The 18p Syndrome Video Library is a comprehensive and educational resource designed to provide families, caregivers, and medical professionals with valuable insights into 18p deletion syndrome. This library features a collection of videos that cover various aspects of the condition, including medical explanations, personal stories from families, and discussions on the latest research and treatments.
Dive into our family’s journeys with Chromosome 18 and see what amazing lives they lead! Click the pictures below to see helpful videos from Chromosome 18 family members and Self-Advocates.
Welcome to the
18q Syndrome Video Library
” The registry has always been there for us. Participating in the research and conferences has pro...More
“Remember to believe in yourself and have fun with your life. Everyday is a new day.” – Megan ...More
“My daughter is a unique wonderful child despite the chromosome abnormality will brighten up your ...More
We’re so grateful for the Chromosome 18 community! Lauryn is happy and thriving now, but without t...More
“18q deletion does not define your child. Learn all you can but always remember: your child is uni...More
“Please just be yourselves. Even with everyday struggles we (Self Advocates) can do anything in ...More
“I’m a fun loving, guy. I attend college and work part time at the local bowling alley. Most peo...More
“I slept and dreamt that life was joy. I awoke and saw that life was service. I acted and behold, ...More
“Our families have a very different journey than most. Together we learn, provide support and unde...More
A C18 Parent and Coordinator