Find Your Coordinator

Regional Coordinators

Northeast – Kim and Dave Stoddard
Mid-Atlantic – Mike Fudala
Southeast – OPEN
Great Lakes – Melanie Gorrell
Rocky Mountain – Angie Moss
Great Plains – Kerry Connolly
South Central – OPEN
Texas Area – Tam Aldrup
Northwest – Joy Wilson
Southwest – Tracy Stevens

Canadian Coordinator- Shelley Hunt

Bereavement Coordinator – Catherine Burzio
Sibling Coordinator – Catherine Larson
Self-Advocate Coordinator – Racine Ghiz

Syndrome Coordinators

Tetrasomy 18p – Marie Primeau
Trisomy 18 – Jude Wolpert
Ring 18 – Tanis Nicholson
18p- – Katharine Newman
18q- Kelly Collins

Members can contact the office at to be connected with your appropriate coordinator.