Annual Conference

Our 2018 conference will be held in Baltimore, MD

  Dates: Monday, July 2nd to Wednesday, July 4th.  

Hotel: Renaissance Baltimore Harborplace Hotel

Registration: Afternoon of Sunday, July 1st

Below are all the details we currently have available.  

We will release additional details as they become available to us.

General Information

The 2018 Conference will be held at the Renaissance Baltimore Harborplace Hotel  from Sunday, July 1st through Wednesday, July 4th. Baltimore is located just an hour outside of Washington, DC and is easily accessible by all methods of travel Come and join us in what is sure to be a great conference where you’ll get to see some old friends and meet many new friends. If this is your first time, we strongly encourage you to come with the whole family as we have lots of different programs and fun events for everybody.

Over the course of the three days many different speakers and events are available including four tracks of presentations for: the families of young children, the families of adolescents/young adults, siblings and self-advocates.  The sibling track is planned and run by our adult siblings trained in child development and facilitation.  The self-advocate track is for those affected individuals over the age of 16 who can function independently within the conference environment. There will be breakout discussion sessions for each syndrome group as well as for regional groups. 

The conference culminates on Wednesday evening with the Starfish Dinner and Dance and can guarantee that you will have so much fun, making it hard to say goodnight and goodbye to your Chromosome 18 family.  The Starfish Dinner & Dance is open to all (registered conference attendees, family, friends, community partners and sponsors). Tickets for unreserved seating are included in the conference registration.  All others may purchase tickets once registration opens. This is a perfect opportunity for anyone who is not attending the conference to be part of our special event. The evening will end with Fourth of July Fireworks over the Baltimore Harbor – it will definitely be a night to remember!

2017 Conference Committee

Conference Chair – Nichole McVicker, [email protected]

Our 2017 Annual Conference was held in Naperville, IL from July 12-15th.  

Naperville 2017 Annual Conference Review

It wouldn’t be July without the Chromosome 18 Annual Conference! This year was no different, as we celebrated our 24th Annual Conference at the Chicago Naperville Marriott in Naperville, Illinois. Our wonderful conference chairs Kathy Borello and Ivette Ruiz Cohen spent countless hours during the year to make this conference a memorable experience for the attendees, and all that hard work and effort really paid off! We had 436 people in attendance making this year’s conference one of the largest gatherings the Chromosome 18 Registry & Research Society has had in the conference’s 24 year history. Over 600 hotel rooms were booked, 97 people attend the conference for the first time, numerous individuals registered for the Chromosome 18 Clinical Research Center’s study for the first time, and we had a wonderful keynote speech by Chris Ulmer.

A wide variety of topics were covered by our amazing speakers who all donated their time and expertise to help all the families.  We had so many wonderful family members that helped with everything from registration, merchandise, room hosting, speaker listing, AV, DJ, and the silent auction to name just a few. As our conference gets bigger, we have to thank the amazing dedication of everybody that donates their time to give the attendees such a high quality of experience at a primarily volunteer organized conference.

Several different events were organized for the self advocates this year including a meal at the Pour House, fun and games at the Naperville Yard, and throwing a ten pin strike at Bowlero.  The siblings had lots happening as well and joined in with many fun events at the hotel and their own trips to Naperville Yard and the Pour House.  The Men’s Night saw a large group head off on the Trolley (Ding, Ding) to Top Golf and the Ladies Night hosted a Bunco Party with some traditional Chicago Pizza being delivered.

Our final night had a packed ballroom for the Starfish Dinner & Dance, and as always, this night didn’t disappoint with a full dance floor with everybody joining in the fun for hours.  Helping offset some of the costs for the Conference, we sold a lot of amazing new merchandise plus the silent and live auctions were a huge success.  Thanks to everybody who made donations to the auctions and over $9,000 was raised for the Registry!

Everybody is excited about our 25th Annual Conference in 2018, and we will be at the Renaissance Hotel in Baltimore Harbor from July 2-4th. This will culminate in a spectacular fireworks display that we will be able to view from the comfort of the hotel after the conclusion of the Starfish Dinner & Dance.  Get your dancing shoes ready for Baltimore it’s going to be a blast!


The conference will be held at the Renaissance Baltimore Harborplace Hotel and rooms will be available at a special rate of $159 per night. More information on hotel accommodations coming soon!

Are you planning to extend your stay in Baltimore before or after the conference?  Check out this list of area activities.  


Starfish Dinner & Dance 

Everybody will be enjoying a wonderful night to include a three-course meal, awards presentation and silent and live auctions and lots of dancing as the culmination of a fantastic few days as the annual conference draws to a close at our Starfish Dinner & Dance that will take place on the evening of Wednesday, July 4th.

The Starfish Dinner & Dance is open to all (registered conference attendees, family, friends, community partners and sponsors). Tickets for unreserved seating are included in the conference registration.  All others may purchase tickets once registration opens. This is a perfect opportunity for anyone who is not attending the conference to be part of our special event. 

VIP Reserved Table Fundraiser 

Raise at least $1,500 and you’ll be able to pick your choice of table (10 top) in the Ballroom for the Starfish Dinner & Dance and choose how you would like to be recognized by selecting your table name along with reserved seating.

Want to be right in the front, up close and in the center of the action? Prefer to be at the back to take it all in?  You decide…..

Frequently Asked Questions

Attendees frequently have questions about what to expect at the conference and how registration works.  We invite you to read our FAQ’s to learn more about the conference and contact us with any additional questions!  Feel free to contact the Registry office for registration assistance and / or questions at [email protected] or call 210.657.4968

Helpful Resources

More information coming soon!


More information coming soon!


More information coming soon!

Schedule Information

More information coming soon!

Registration Forms:

More information coming soon!

Topics and Speakers

More information coming soon!

Future Conference Locations

July 1-4, 2018- Renaissance Baltimore Harborplace Hotel, 202 East Pratt Street, Baltimore, MD, 21202

Past Conference Locations

  • 2017- Naperville, Illinois
  • 2016- San Antonio, Texas
  • 2015- Salt Lake City, Utah
  • 2014- Stamford, Connecticut
  • 2013- Savannah, Georgia
  • 2012- San Antonio, Texas
  • 2011- Indianapolis, Indiana
  • 2010- Tulsa, Oklahoma
  • 2009- Las Vegas, Nevada
  • 2008- San Antonio, Texas
  • 2007- Plymouth, Massachusetts
  • 2006- Anaheim, California
  • 2005- Estes Park, Colorado
  • 2004- San Antonio, Texas
  • 2003- Hershey Pennsylvania
  • 2002- Niagara Falls, Ontario, Canada
  • 2001- Midway, Utah
  • 2000- Boerne, Texas
  • 1999- Arlington, Virginia
  • 1998- Winter Park, Colorado
  • 1997- Oakbrook, Illinois
  • 1996- Memphis, Tennessee
  • 1995- San Antonio, Texas
  • 1994- Schaumburg, Illinois