Chromosome 18's mission is to help individuals with chromosome 18 abnormalities overcome the obstacles they face, so they may lead happy, healthy, and productive lives. Our mission has three facets: building community, expanding education, and advancing research. Our shared vision is that one day, children with chromosome 18 abnormalities will have the same aspirations and achievements in life as their siblings.
We are well aware of the enormity of that vision, but we have a clearly defined path and are making steady progress to realize that vision. The progress and the joy are both thanks to the dedication of our many members who support each other while on our path to making this vision a reality. Whether they dedicate hours or dollars or both, they make this success happen.
- Dr. Jannine Cody, Chromosome 18 Registry & Research Society President & Founder
Join Chromosome 18 Registry & Research Society’s Starfish Scramble at Topgolf Houston.
Together, we’ll have an afternoon of golf, comradery, spirit, and fun while raising awareness and money for our organization’s mission of helping people with chromosome 18 abnormalities overcome the obstacles they face so they may lead happy, healthy and productive lives.
Clubs will be provided or you may bring your own.
Everyone is invited and teams are encouraged to participate. Fundraising efforts are highly encouraged and appreciated. All funds raised will go toward the goal of making chromosome 18 the first treatable chromosome abnormality.
Once you have registered, joined a team or created a team, you can personalize your page; upload a picture, nickname your fundraiser, adjust your goal, modify your page headline & invite friends and family to participate & donate to help reach your goals.
Click here to register!
We are excited to share the story of one of the many wonderful families of The Chromosome 18 Registry & Research Society. The Morgan family rallied their community around Ben, who has Tetrasomy 18p.