Welcome to the Registry

Founded in 1990, The Chromosome 18 Registry & Research Society is a registered 501(c)(3) non-profit, tax-exempt public charity dedicated to making chromosome 18 conditions the first treatable chromosome abnormalities. We count within our membership thousands of parents, siblings, extended family and friends, businesses, and affected individuals. Registry membership is open to any interested person.

Our work is supported by private donations from members, foundations and charitable organizations, businesses, and others interested in supporting our mission. We use these contributions and gifts to invest in both people and science; supporting our members through education and a sense of community while also focusing squarely on impactful clinical research that will lead to healthier, happier, and more independent lives for those affected and their families.

News & Events

Member Highlights

A Heart-Warming Video from Down Under

We are excited to share the story of one of the many wonderful families of The Chromosome 18 Registry & Research Society. The Morgan family rallied their community around Ben, who has Tetrasomy 18p. 

Sign Up for Emails & Newsletters!