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September 2015

Support the Registry with Amazon Smile!!

September 11, 2015 - September 11, 2020
Are you looking for an easy way to help support the Registry and our mission?  Shop on Amazon Smile and a portion of your order total will be donated to us by Amazon! Find out more »

Rock ‘n’ Roll Marathon Series

September 26, 2015 - December 31, 2016
We began our relationship with the Rock ‘n’ Roll Marathon Series in 2014 and have since raised over $45,000 to fund Registry services and research. Many cities offer shorter distance races such as the 5k and 10k so please check out our event page for more information on our upcoming races.  We hope you can join us. Find out more »
August 2016

Great Plains Regional Get-Together/Fundraiser

August 28 @ 11:30 am - 5:30 pm
Join us on Sunday, August 28th, 2016 at Shady Oaks Camp in Homer Glen, IL for a day of fun and games. Find out more »
October 2016

Gastroenterology Talk

October 15 @ 6:00 pm - 9:30 pm
Saturday, October 15th, 6:00 p.m. to 9:30 p.m.  Philadelphia, PA – place to be determined.  Two pediatric physicians from The Children’s Hospital of Philadelphia (CHOP) will discuss GI problems, solutions, and management.    Find out more »
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