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September 2015

Support the Registry with Amazon Smile!!

September 11, 2015 - September 11, 2020
Are you looking for an easy way to help support the Registry and our mission?  Shop on Amazon Smile and a portion of your order total will be donated to us by Amazon! Find out more »

Rock ‘n’ Roll Marathon Series

September 26, 2015 - March 19, 2016
We began our relationship with the Rock ‘n’ Roll Marathon Series in 2014 and have since raised over $35,000 to fund Registry services and research. We have committed to the following cities for the remainder of 2015: San Jose, St. Louis, and San Antonio.  We hope you can join us. Find out more »
October 2015

20th Annual Phantom Tea

October 1, 2015 - March 31, 2016
We are delighted to present the Twentieth Annual “Phantom Tea.”  Please join us in helping to make chromosome 18 conditions the first treatable chromosome abnormalities.  This is our largest annual fundraiser and we are hoping to make this our best year yet. Find out more »

Fantasy Gives

October 5, 2015 - January 1, 2016
We are excited to announce a partnership with Fantasy Gives to offer fantasy football as a Registry fundraiser. Fantasy football has become a national sensation with 41.5 million participants last year. We can now offer fantasy football contests to generate revenue for the Registry. Find out more »
July 2016

2016 Annual Family Conference

July 10, 2016 - July 13, 2016
San Antonio Marriott Riverwalk,
889 East Market St
San Antonio, TX 78205 United States
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Our 23rd Annual Family Conference will be held from July 10th to July 13th, 2016 at the San Antonio Marriott Riverwalk in San Antonio, TX.  We hope that you can join us for what will surely be an exciting and informative experience! Find out more »
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