Thilo Eckholdt, uncle to a Registry member, has created a fantastic video series using interviews with Registry families.  We invite you to listen to their words and experiences.

Thilo Eckholdt, uncle to a Registry member, has created a fantastic video series using interviews with Registry families.  We invite you to listen to their words and experiences.

What the Registry means to our members:

What the Registry means to our members:

Families share their hopes for the future in the following video:

Families share their hopes for the future in the following video:

Families talk about their fears:

Families talk about their fears:

Registry members share what you should know about life with a chromosome 18 change:

Registry members share what you should know about life with a chromosome 18 change:

Families give their final words of advice:

Families give their final words of advice:

We had a fantastic time in Las Vegas at our annual conference. Take a look, and consider joining us next year!

We had a fantastic time in Las Vegas at our annual conference. Take a look, and consider joining us next year!