The Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with one of the chromosome 18 abnormalities. We are also proud to count among our members affected individuals, extended family members and professionals. Membership is open to any interested person. We are a 501(c)(3) non-profit, tax-exempt public charity. Our work is supported by memberships and donations from individuals and charitable organizations. We have met the strict criteria for fiscal responsibility set by the Combined Federal Campaign.
Our mission is to help individuals with chromosome 18 abnormalities overcome the obstacles they face so they might lead happy, healthy and productive lives.
We accomplish this through:
Service
- Newsletters
- Annual Conference
- Parent Network
- Syndrome groups
- Regional groups
Education
- Syndrome information
- Public advocacy
Research
- Funding clinical research
We believe there are no incurable conditions, only ones that have not yet been understood. We are dedicated to seeing that treatments for the abnormalities of chromosome 18 are developed.
How to contact us
Our office is located at:
7155 Oakridge Drive
San Antonio, TX 78229
The phone and fax number is:
(210) 657-4968
You can also send us an e-mail.