Photograph courtesy of Rick Guidotti of Positive Exposure.
Meet Our Board  


Meet Our Board  

The Board of Directors of the Chromosome 18 Registry & Research Society help to determine the direction of the organization.  The Executives ensure that the Registry is consistently working to achieve its mission.  The Coordinators organize events, send out newsletters, and serve as a resource for members of the Registry. 

The Board of Directors of the Chromosome 18 Registry & Research Society help to determine the direction of the organization.  The Executives ensure that the Registry is consistently working to achieve its mission.  The Coordinators organize events, send out newsletters, and serve as a resource for members of the Registry. 



Executives  

Founder and President
Jannine D. Cody, Ph.D. (Résumé , My Story)

Vice President for Member Relations
Catherine Burzio

Vice President for Public Relations
Ben Flowe, Jr.

Secretary
Kristen Earl (Résumé, My Story)

Treasurer
Denise Parker



Syndrome Coordinators  

18q-
Katie Schilly

Tetrasomy 18p
Shelby Griffin

Ring 18
Camille Hammond

18p-
Kathy Buchanan

Trisomy 18
Judith Wolpert (Résumé, My Story)



Other Coordinators  

Sibling Coordinator
Andy Flowe

Bereavement Coordinator
Charlett Lambden

Self-Advocate Coordinator
Mark Sogard

Sibling Coordinator
Andy Flowe

Bereavement Coordinator
Charlett Lambden

Self-Advocate Coordinator
Mark Sogard



International Coordinators  

Australia (also New Zealand, Oceania)
Marlene Brightwell

Canada
Shelley Hunt

Europe
Bonnie McKerracher

South America
Leopoldo Garcia

Australia (also New Zealand, Oceania)
Marlene Brightwell

Canada
Shelley Hunt

Europe
Bonnie McKerracher

South America
Leopoldo Garcia



Regional Coordinators  

Great Lakes
Melanie Gorrell (Résumé, My Story)

Great Plains
Cindy Josefson

Mid Atlantic
Amber Styron

Northeast
Lisa Mazur

Northwest
Kimberly Rodriguez

Rocky Mountain
Angie Moss

South Central
Martha Sakre

Southeast
Shelby Griffin

Southwest
Susan Guthrie

Texas Area
Tam Aldrup

 

Great Lakes
Melanie Gorrell (Résumé, My Story)

Great Plains
Cindy Josefson

Mid Atlantic
Amber Styron

Northeast
Lisa Mazur

Northwest
Kimberly Rodriguez

Rocky Mountain
Angie Moss

South Central
Martha Sakre

Southeast
Shelby Griffin

Southwest
Susan Guthrie

Texas Area
Tam Aldrup

 



Regional and International Maps  

 

 



 

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