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The Story of the Starfish
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The following is a story from “Chicken Soup for the Soul” and is illustrative of the spirit of our members.
One at a Time
A friend of ours was walking down a deserted Mexican beach at sunset. As he walked along, he began to see another man in the distance. As he grew nearer, he noticed that the local native kept leaning down, picking something up and throwing it out into the water. Time and again he kept hurling things out into the ocean.
As our friend approached even closer, he noticed that the man was picking up starfish that had been washed up on the beach and, one at a time, he was throwing them back into the water.
Our friend was puzzled. He approached the man and said, “Good evening, friend. I was wondering what you are doing.”
“I’m throwing these starfish back into the ocean. You see, it’s low tide right now and all of these starfish have been washed up onto the shore. If I don’t throw them back into the sea, they’ll die up here from lack of oxygen.”
“I understand,” my friend replied, “but there must be thousands of starfish on this beach. You can’t possibly get to all of them. There are simply too many. And don’t you realize this is probably happening on hundreds of beaches all up and down this coast. Can’t you see that you can’t possibly make a difference?”
The Local native smiled, bent down and picked up yet another starfish, and as he threw it back into the sea, he replied, “Made a difference to that one!
Jack Canfield and Mark V. Hansen
The local native is like the members of the Registry because he did not say; “there is nothing I can do because I don’t have the money.” He did not say, “I can not make a difference because I am not powerful.” He did not say, “I can not do this because I don’t have enough friends to help.” Instead he made the most of what he had, his own spirit and energy and he made a difference in the ways that he could make a difference. This is what so many of our members do. In presenting this list of people an accomplishments we applaud each and everyone for the spirit and passion they bring to the cause of helping people with chromosome 18 abnormalities become the most that they can.
The following is a story from “Chicken Soup for the Soul” and is illustrative of the spirit of our members.
One at a Time
A friend of ours was walking down a deserted Mexican beach at sunset. As he walked along, he began to see another man in the distance. As he grew nearer, he noticed that the local native kept leaning down, picking something up and throwing it out into the water. Time and again he kept hurling things out into the ocean.
As our friend approached even closer, he noticed that the man was picking up starfish that had been washed up on the beach and, one at a time, he was throwing them back into the water.
Our friend was puzzled. He approached the man and said, “Good evening, friend. I was wondering what you are doing.”
“I’m throwing these starfish back into the ocean. You see, it’s low tide right now and all of these starfish have been washed up onto the shore. If I don’t throw them back into the sea, they’ll die up here from lack of oxygen.”
“I understand,” my friend replied, “but there must be thousands of starfish on this beach. You can’t possibly get to all of them. There are simply too many. And don’t you realize this is probably happening on hundreds of beaches all up and down this coast. Can’t you see that you can’t possibly make a difference?”
The Local native smiled, bent down and picked up yet another starfish, and as he threw it back into the sea, he replied, “Made a difference to that one!
Jack Canfield and Mark V. Hansen
The local native is like the members of the Registry because he did not say; “there is nothing I can do because I don’t have the money.” He did not say, “I can not make a difference because I am not powerful.” He did not say, “I can not do this because I don’t have enough friends to help.” Instead he made the most of what he had, his own spirit and energy and he made a difference in the ways that he could make a difference. This is what so many of our members do. In presenting this list of people an accomplishments we applaud each and everyone for the spirit and passion they bring to the cause of helping people with chromosome 18 abnormalities become the most that they can.
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Making a Difference (2011)
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Unique Ways to Give
- The Furgiuele Family held the 3rd Annual Skating Party in honor of their daughter, Julia (18q-)! It was a very successful event, with members of the local hockey team, the Buzzers, in attendance. Take a look at a video slideshow of the event!
Julia's Annual Skating Party (2011) from Chromosome18 on Vimeo.
- Madison Horne is a great big sister to Logan Horne (18q-)! She decided to open a lemonade stand to raise funds for research into her brother's condition! What a great idea!
- The Buccieri Family recently held a fundraiser in honor of their daughter, Annabelle Hope, who had Trisomy 18 and sadly passed away at two and a half months of age. The family held a Bike Run to raise money for the Chromosome 18 Registry & Research Society. You can learn more about the event and see a picture of beautiful Annabelle at this page.
- The Howe Family recently held a run in honor of their son, Deakon (ring 18). It was a tremendous success! You can read all about the run at the blog dedicated to the event. As Deakon's mother wrote, "...(E)veryone who attended our event left with a smile and hope for their own future. It was such an amazing day, and an amazing way to celebrate our boy’s fifth birthday. We hope to make this an annual event and the feedback has shown us that in my highest hopes, our proceeds quite realistically have the chance at doubling for next year. Our kids have a magnificent amount of power, and when inspired, people really are willing to support and give."
- Kim Post from Bennington, VT, that well-known baker and mother of Nova Mae (tetrasomy 18p) carried over her Dessert Event Fundraiser into 2011. She just handed the Registry another check to help further research. And she doesn’t stop finding ways to spread the word about chromosome 18 changes. Recently, she was interviewed on a local radio station to tell her story and the impact of the Registry on Nova Mae and her family. Three children and a tearoom/antique store doesn’t keep her busy enough, so now she is planning another fundraiser. She is calling it Cupcakes for Chromosome 18. Her goal is to sell 5000 cupcakes at $1.00 each before the conference this July in Indianapolis. Husband David and her many friends in the wonderful town of Bennington are always there to support her efforts, so there is a good chance she will again be baking up a storm! Feel free to contact Kim if you have any questions or comments. dkpost131@comcast.net or 917-902-4962.
Individual Fundraisers
- Jewelry Party (Fall 2011) by Stacey Gallardo (Daughter: Amelia, tetrasomy 18p).
Unique Ways to Give
- The Furgiuele Family held the 3rd Annual Skating Party in honor of their daughter, Julia (18q-)! It was a very successful event, with members of the local hockey team, the Buzzers, in attendance. Take a look at a video slideshow of the event!
Julia's Annual Skating Party (2011) from Chromosome18 on Vimeo.
- Madison Horne is a great big sister to Logan Horne (18q-)! She decided to open a lemonade stand to raise funds for research into her brother's condition! What a great idea!
- The Buccieri Family recently held a fundraiser in honor of their daughter, Annabelle Hope, who had Trisomy 18 and sadly passed away at two and a half months of age. The family held a Bike Run to raise money for the Chromosome 18 Registry & Research Society. You can learn more about the event and see a picture of beautiful Annabelle at this page.
- The Howe Family recently held a run in honor of their son, Deakon (ring 18). It was a tremendous success! You can read all about the run at the blog dedicated to the event. As Deakon's mother wrote, "...(E)veryone who attended our event left with a smile and hope for their own future. It was such an amazing day, and an amazing way to celebrate our boy’s fifth birthday. We hope to make this an annual event and the feedback has shown us that in my highest hopes, our proceeds quite realistically have the chance at doubling for next year. Our kids have a magnificent amount of power, and when inspired, people really are willing to support and give."
- Kim Post from Bennington, VT, that well-known baker and mother of Nova Mae (tetrasomy 18p) carried over her Dessert Event Fundraiser into 2011. She just handed the Registry another check to help further research. And she doesn’t stop finding ways to spread the word about chromosome 18 changes. Recently, she was interviewed on a local radio station to tell her story and the impact of the Registry on Nova Mae and her family. Three children and a tearoom/antique store doesn’t keep her busy enough, so now she is planning another fundraiser. She is calling it Cupcakes for Chromosome 18. Her goal is to sell 5000 cupcakes at $1.00 each before the conference this July in Indianapolis. Husband David and her many friends in the wonderful town of Bennington are always there to support her efforts, so there is a good chance she will again be baking up a storm! Feel free to contact Kim if you have any questions or comments. dkpost131@comcast.net or 917-902-4962.
Individual Fundraisers
- Jewelry Party (Fall 2011) by Stacey Gallardo (Daughter: Amelia, tetrasomy 18p).
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Making a Difference (2010)
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Unique Ways to Give:
- On Thursday, December 30th, the Furgiuele Family hosted their 2nd Annual Skating Party in honor of Julia (18q-)! It was held once again at St. Michael’s College School Arena in Toronto, Canada. This years attendance exceeded expectations once again. There were people anxiously waiting at the door at 6.40 pm for a 7 pm start. Thanks to the strong attendance at the door and the help of some corporate sponsors and generous donations, they surpassed last year's total! Julia was once again was presented with a special plaque and award for being the Most Dedicated St. Michael’s Buzzer fan. The Buzzers are a local hockey team who plays at the arena. All of the team showed up for Julia's party!
- Kevin Margolin is a junior in high school. He is the cousin of Sydney Alper, who has 18q-. As a part of his community service, he and his family have collected cans and bottles to recycle in order to raise money for the Chromosome 18 Registry & Research Society. They call it "Can for Cures". Thanks to them, we're even closer to finding treatments and therapies for chromosome 18 conditions!
- Young people have hearts of gold! Josh Pullara is 15 years old, and is a friend of the Bajner family of Plainfield, IL. (Jimmy Bajner is 6 years old and has 18q-). Josh’s dad gave his children money to donate at Christmas to a charity of their choice. Josh chose to give it to The Chromosome 18 Registry in honor of his little friend, Jimmy. Hats off to Josh and to Josh’s dad for instilling admirable qualities in his children.
- On Feb. 17th, 2010, Katelyn Haney had her beautiful long hair cut to raise money to help other children. She donated her hair to an organization that makes wigs for children undergoing chemotherapy. $2200.00 was donated to the Chromosome 18 Research Society in hopes that some day there will be enough research to answer some of the “unknown” questions surrounding children with Tetrasomy 18p. Two other organizations (A new Cancer Centre and the Niagara Peninsula Children’s Centre) also benefited from donations of equal amounts. So many people have touched Katelyn’s life in so many ways and this was her way of giving something back. The family hopes to inspire other people to do the same.
- Brittany and Joshua Zyduck, parents of Gavin who has 18q-/6p+, are new members of the Registry. They designed and sold tee-shirts with Chromosome 18 Registry information to bring awareness to their community of Scott City, MO, of chromosome 18 changes. Their successful event is just one more way families are helping research efforts.
- Matthew Lollis (18p-) lives in Hanover, NH, with his parents, Scott and Frederique. An amazing young lady, Abigail Smith, babysits for him occasionally. Abigail, a junior at Dartmouth, and her sorority sisters plan to host a series of events that will bring awareness to chromosome 18 changes while also raising funds for chromosome 18 research. The first event is a bake sale, and more events are planned. For more information or to find out how you can help, Frederique asks that you contact her at fthibault@hotmail.com or 603-359-1660.
- A wedding is always a joyous occasion. One lovely newlywed couple chose to use their special day to honor their cousin, who has a chromosome 18 abnormality, and donate to the Chromosome 18 Registry & Research Society at the same time. In lieu of wedding favors, the bride and groom used a place card to display the logo and mission of the Registry. They then made a donation to The Registry. There have been several other couples who have done this over the years. All are very special and giving people!
Individual Fundraisers:
- Ladies Luncheon and Silpada Jewelry Party (October 2010) by Alyson, Annemarie, and Emily Weatherhead.
- Yankee Candle Sale (November 2010) by Tara Strzelecki, Phoenixville, PA (Daughter: Teagan, 18q- mosaicism).
- Garage Sale (October 2010) by James and Shelby Griffin, Tampa, FL (Son: Alexander, Tetrasomy 18p).
- Premier Jewelry Party (September 2010) by Emily Rogers, Midwest, OK (Son: Venoy, 18q-).
- Pampered Chef Party (2010) by Melanie Gorrell, Greenwood, IN (Son: Evan, 18p-).
- Kayak Raffle and Golf Outing (2010) by the Lee Family, Boonville, NY (Son: Owen, Tetrasomy 18p).
- Dessert Event (2010) by the Post Family, Bennington, VT (Daughter: Nova Mae, Tetrasomy 18p).
- Garage Sale (2010) by the Ritchie Family, Mount Juliet, TN (Son: Luke, Tetrasomy 18p).
- Silent Auction (2010) by the Watson Family, Deport, TX (Son: Jalon, 18q-).
- Jewelry Party (2010) by the Cody girls, San Antonio, TX (Elizabeth: 18q-).
- Conference Fundraiser (2010) by Dan and Katie Schilly, Olathe, KS (Daughter: Remy, 18q-)
- Family Fun Walk (November, 2010) by John and Monica McDivitt, Katy, TX (Daughter: Sam, 18q-)
Unique Ways to Give:
- On Thursday, December 30th, the Furgiuele Family hosted their 2nd Annual Skating Party in honor of Julia (18q-)! It was held once again at St. Michael’s College School Arena in Toronto, Canada. This years attendance exceeded expectations once again. There were people anxiously waiting at the door at 6.40 pm for a 7 pm start. Thanks to the strong attendance at the door and the help of some corporate sponsors and generous donations, they surpassed last year's total! Julia was once again was presented with a special plaque and award for being the Most Dedicated St. Michael’s Buzzer fan. The Buzzers are a local hockey team who plays at the arena. All of the team showed up for Julia's party!
- Kevin Margolin is a junior in high school. He is the cousin of Sydney Alper, who has 18q-. As a part of his community service, he and his family have collected cans and bottles to recycle in order to raise money for the Chromosome 18 Registry & Research Society. They call it "Can for Cures". Thanks to them, we're even closer to finding treatments and therapies for chromosome 18 conditions!
- Young people have hearts of gold! Josh Pullara is 15 years old, and is a friend of the Bajner family of Plainfield, IL. (Jimmy Bajner is 6 years old and has 18q-). Josh’s dad gave his children money to donate at Christmas to a charity of their choice. Josh chose to give it to The Chromosome 18 Registry in honor of his little friend, Jimmy. Hats off to Josh and to Josh’s dad for instilling admirable qualities in his children.
- On Feb. 17th, 2010, Katelyn Haney had her beautiful long hair cut to raise money to help other children. She donated her hair to an organization that makes wigs for children undergoing chemotherapy. $2200.00 was donated to the Chromosome 18 Research Society in hopes that some day there will be enough research to answer some of the “unknown” questions surrounding children with Tetrasomy 18p. Two other organizations (A new Cancer Centre and the Niagara Peninsula Children’s Centre) also benefited from donations of equal amounts. So many people have touched Katelyn’s life in so many ways and this was her way of giving something back. The family hopes to inspire other people to do the same.
- Brittany and Joshua Zyduck, parents of Gavin who has 18q-/6p+, are new members of the Registry. They designed and sold tee-shirts with Chromosome 18 Registry information to bring awareness to their community of Scott City, MO, of chromosome 18 changes. Their successful event is just one more way families are helping research efforts.
- Matthew Lollis (18p-) lives in Hanover, NH, with his parents, Scott and Frederique. An amazing young lady, Abigail Smith, babysits for him occasionally. Abigail, a junior at Dartmouth, and her sorority sisters plan to host a series of events that will bring awareness to chromosome 18 changes while also raising funds for chromosome 18 research. The first event is a bake sale, and more events are planned. For more information or to find out how you can help, Frederique asks that you contact her at fthibault@hotmail.com or 603-359-1660.
- A wedding is always a joyous occasion. One lovely newlywed couple chose to use their special day to honor their cousin, who has a chromosome 18 abnormality, and donate to the Chromosome 18 Registry & Research Society at the same time. In lieu of wedding favors, the bride and groom used a place card to display the logo and mission of the Registry. They then made a donation to The Registry. There have been several other couples who have done this over the years. All are very special and giving people!
Individual Fundraisers:
- Ladies Luncheon and Silpada Jewelry Party (October 2010) by Alyson, Annemarie, and Emily Weatherhead.
- Yankee Candle Sale (November 2010) by Tara Strzelecki, Phoenixville, PA (Daughter: Teagan, 18q- mosaicism).
- Garage Sale (October 2010) by James and Shelby Griffin, Tampa, FL (Son: Alexander, Tetrasomy 18p).
- Premier Jewelry Party (September 2010) by Emily Rogers, Midwest, OK (Son: Venoy, 18q-).
- Pampered Chef Party (2010) by Melanie Gorrell, Greenwood, IN (Son: Evan, 18p-).
- Kayak Raffle and Golf Outing (2010) by the Lee Family, Boonville, NY (Son: Owen, Tetrasomy 18p).
- Dessert Event (2010) by the Post Family, Bennington, VT (Daughter: Nova Mae, Tetrasomy 18p).
- Garage Sale (2010) by the Ritchie Family, Mount Juliet, TN (Son: Luke, Tetrasomy 18p).
- Silent Auction (2010) by the Watson Family, Deport, TX (Son: Jalon, 18q-).
- Jewelry Party (2010) by the Cody girls, San Antonio, TX (Elizabeth: 18q-).
- Conference Fundraiser (2010) by Dan and Katie Schilly, Olathe, KS (Daughter: Remy, 18q-)
- Family Fun Walk (November, 2010) by John and Monica McDivitt, Katy, TX (Daughter: Sam, 18q-)
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Making a Difference (2008-2009)
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Unique Ways to Give
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Nova Mae Post is the daughter of David and Kim Post who live in Bennington, VT. Nova Mae has Tetrasomy 18p and just turned three in January 2010. Nova's mom operates Nova Mae Cafe next to her "Junque" shop in downtown Bennington. In 2009, Kim held a most creative fundraiser. To raise awareness of chromosome 18 abnormalities, especially tetrasomy 18p, and The Chromosome 18 Registry, Kim spent a good deal of her time "sharing" Nova Mae and talking about The Registry. To help raise funds for the Registry, she left out a jar for donations and also pledged a percentage of every cup of her special coffee sold during the year. The impressive total of this unique fundraiser has been sent to the Registry and will be just one more way our families push forward research to help our children and adults with chromosome 18 changes.
Individual Fundraisers, July 2008 through 2009:
- Book Sales, How Bullying Victims Feel (2009) by Becky Hunt, Cambridge, Ontario (Becky, 18p-)
- Ice Skating Party (December 2009) by the Furgiuele/Bove Family, Toronto, Canada (Daughter: Julia, 18q-)
- Golf Outing (2009) by the Lee Family, Boonville, NY (Son: Owen, Tetrasomy 18p).
- Harpers Choice Swim Team (2009) by Friends of Sean McGing, Columbia, MD (Tetrasomy 18p).
- Jewel Food Percentage (2009) by Eric & Cindy Josefson, Round Lake Heights, IL (Son: Eric, 18q-/Trisomy 3).
- Usborne Books Open House (November 2009) by Jason & Melanie Gorrell, Greenwood, IN (Son: Evan, 18p-).
- Applebee's Dining to Donate (October 2009) by Jason & Melanie Gorrell and Thomas & Laury Koppel, Greenwood, IN (Children: Evan Forrell, 18p-, and Trevor Koppel, 18p-).
- Yankee Candle Sale (September 2009) by Natalie Abreu-Horne and Shelby Griffin, Tampa, FL (Children: Logan Horne, 18q-, and Alex Griffin, Tetrasomy 18p).
- Bake Sale (September 2009) by Paul & Deb Ammann, Johnstown, NY (Son: Kevin, 18q-).
- Ziemer Cookout (September 2009) by Dione & Brett Ziemer, Sherwood, AR (Son: Dallas Perez-Ziemer).
- Botello Lumber Company Golf Tournament (August 2009) by Stephen Botello, Mashpee, MA (Sons: Cameron & Joshua, 18q-).
- Conference Fundraiser (2009) by Anita & Deven Wagner, Las Vegas, NV (Daughter: Kiana, Ring 18).
- Yankee Candle Sales (December 2008) by Sal & Sue Bentivenga, Ellicott City, MD (Daughter: Jessica, 18q-).
- Charity Mania for Football (October 2008) by Calvin & Michelle Brewster, Thurmont, MD (Daughter: Karson, 18q-).
- PB's Rock 'N Run (April 2009) by Catherine Burzio, Berryville, VA (Daughter: Pauline, 18p-).
- Basketball Game (July 2009) by Scott & Cara DeMoss, Sullivan, ID (Son: Camden Wayland, Tetrasomy 18p).
- Jewelry Sales (July 2009) by Susan Shaffer, Bristol, PA (18q-).
- Bunco Party (2009) by Richard & Stacey Gallardo, Moorpark, CA (Daughter: Amelia, Tetrasomy 18p).
- Pampered Chef Party (March 2009) by Jason & Melanie Gorrell, Greenwood, IN (Son: Evan, 18p-).
- Walk/Run (November 2008) by Danielle Hainley, Greenwood, IN (Son: Evan, 18p-).
- School Fundraiser by Evan Kaminer, Jericho, NY (Friend: Sydney Alper, 18q-).
- Cookie Bake Party (December 2008) by Jeanne & Jonathan Koehler, Lansdale, PA (Son: Kyle, 18p-/Trisomy 3p).
- Adirondack Paddlefest by friends of Rodney & Jill Lee, Boonville, NY (Son: Owen Lee, Tetrasomy 18p).
- Golf Outing (November 2008) by Rodney & Jill Lee, Boonville, NY (Son: Owen Lee, Tetrasomy 18p).
- Dutch Dash by John & Monica McDivitt and David & Tam Aldrup, et al., Katy, TX (Children: Samantha McDivitt, 18q-, and David Aldrup, mosaic Tetrasomy 18p).
- Online Fundraiser (2008) by Gordon & Lorraine Peruzzo, Weston, Ontario (Daughter: Kaitlyn, mosaic Tetrasomy 18p).
- Run for Reis (2008) by Tracy & Todd Sims, Las Vegas, NV (Son: Reis, 18q-).
- 3 Strikes for Sean (November 2008) by Robert & Jennifer Tavernier, Carol Stream, IL (Son: Sean, 18q-).
- Conference Fundraiser (2009): Anita & Deven Wagner
Unique Ways to Give
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Nova Mae Post is the daughter of David and Kim Post who live in Bennington, VT. Nova Mae has Tetrasomy 18p and just turned three in January 2010. Nova's mom operates Nova Mae Cafe next to her "Junque" shop in downtown Bennington. In 2009, Kim held a most creative fundraiser. To raise awareness of chromosome 18 abnormalities, especially tetrasomy 18p, and The Chromosome 18 Registry, Kim spent a good deal of her time "sharing" Nova Mae and talking about The Registry. To help raise funds for the Registry, she left out a jar for donations and also pledged a percentage of every cup of her special coffee sold during the year. The impressive total of this unique fundraiser has been sent to the Registry and will be just one more way our families push forward research to help our children and adults with chromosome 18 changes.
Individual Fundraisers, July 2008 through 2009:
- Book Sales, How Bullying Victims Feel (2009) by Becky Hunt, Cambridge, Ontario (Becky, 18p-)
- Ice Skating Party (December 2009) by the Furgiuele/Bove Family, Toronto, Canada (Daughter: Julia, 18q-)
- Golf Outing (2009) by the Lee Family, Boonville, NY (Son: Owen, Tetrasomy 18p).
- Harpers Choice Swim Team (2009) by Friends of Sean McGing, Columbia, MD (Tetrasomy 18p).
- Jewel Food Percentage (2009) by Eric & Cindy Josefson, Round Lake Heights, IL (Son: Eric, 18q-/Trisomy 3).
- Usborne Books Open House (November 2009) by Jason & Melanie Gorrell, Greenwood, IN (Son: Evan, 18p-).
- Applebee's Dining to Donate (October 2009) by Jason & Melanie Gorrell and Thomas & Laury Koppel, Greenwood, IN (Children: Evan Forrell, 18p-, and Trevor Koppel, 18p-).
- Yankee Candle Sale (September 2009) by Natalie Abreu-Horne and Shelby Griffin, Tampa, FL (Children: Logan Horne, 18q-, and Alex Griffin, Tetrasomy 18p).
- Bake Sale (September 2009) by Paul & Deb Ammann, Johnstown, NY (Son: Kevin, 18q-).
- Ziemer Cookout (September 2009) by Dione & Brett Ziemer, Sherwood, AR (Son: Dallas Perez-Ziemer).
- Botello Lumber Company Golf Tournament (August 2009) by Stephen Botello, Mashpee, MA (Sons: Cameron & Joshua, 18q-).
- Conference Fundraiser (2009) by Anita & Deven Wagner, Las Vegas, NV (Daughter: Kiana, Ring 18).
- Yankee Candle Sales (December 2008) by Sal & Sue Bentivenga, Ellicott City, MD (Daughter: Jessica, 18q-).
- Charity Mania for Football (October 2008) by Calvin & Michelle Brewster, Thurmont, MD (Daughter: Karson, 18q-).
- PB's Rock 'N Run (April 2009) by Catherine Burzio, Berryville, VA (Daughter: Pauline, 18p-).
- Basketball Game (July 2009) by Scott & Cara DeMoss, Sullivan, ID (Son: Camden Wayland, Tetrasomy 18p).
- Jewelry Sales (July 2009) by Susan Shaffer, Bristol, PA (18q-).
- Bunco Party (2009) by Richard & Stacey Gallardo, Moorpark, CA (Daughter: Amelia, Tetrasomy 18p).
- Pampered Chef Party (March 2009) by Jason & Melanie Gorrell, Greenwood, IN (Son: Evan, 18p-).
- Walk/Run (November 2008) by Danielle Hainley, Greenwood, IN (Son: Evan, 18p-).
- School Fundraiser by Evan Kaminer, Jericho, NY (Friend: Sydney Alper, 18q-).
- Cookie Bake Party (December 2008) by Jeanne & Jonathan Koehler, Lansdale, PA (Son: Kyle, 18p-/Trisomy 3p).
- Adirondack Paddlefest by friends of Rodney & Jill Lee, Boonville, NY (Son: Owen Lee, Tetrasomy 18p).
- Golf Outing (November 2008) by Rodney & Jill Lee, Boonville, NY (Son: Owen Lee, Tetrasomy 18p).
- Dutch Dash by John & Monica McDivitt and David & Tam Aldrup, et al., Katy, TX (Children: Samantha McDivitt, 18q-, and David Aldrup, mosaic Tetrasomy 18p).
- Online Fundraiser (2008) by Gordon & Lorraine Peruzzo, Weston, Ontario (Daughter: Kaitlyn, mosaic Tetrasomy 18p).
- Run for Reis (2008) by Tracy & Todd Sims, Las Vegas, NV (Son: Reis, 18q-).
- 3 Strikes for Sean (November 2008) by Robert & Jennifer Tavernier, Carol Stream, IL (Son: Sean, 18q-).
- Conference Fundraiser (2009): Anita & Deven Wagner
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