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11th Annual Chromosome 18 Charity Golf Tournament
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To see a list of everyone who had a hand in the success of this year's Tournament, click here.
Our 11th Annual Chromosome 18 Charity Golf Tournament was held on May 14, 2011. It was a wonderful event filled with familiar faces as well as new friends. We had 140 golfers and some members of our Executive Board present. David Aldrup, Liz Cody and Ross Traa were there, adding something special to everyone’s day. This was the fourth year we held the event at Canyon Springs Golf Club, and it is a very picturesque venue. It is the epitome of Texas Hill country with its wild flowers, waterfall, old barns, architecture, and real live long horns. The pavilion where the registration, breakfast, lunch, and awards reception is held is a big circular room with rafters and wood. There is plenty of space in this one room for all of our golfers and our 25+ volunteers.
The day began at about 5:00 am for many of our volunteers. After setting up and getting the golfers situated, we have our balloon release ceremony. As the golfers are all lined up in their carts, we call the names of children who have died in the recent past and had a chromosome 18 syndrome, or those individuals who are connected to The Registry who have passed away. After their names are called, one of our board members or that person’s family member releases the balloon. Although the day was particularly windy, the balloons made their way up to the clouds. The golfers were read a quote from Helen Keller: “What we once enjoyed and deeply loved, we can never lose – for all that we love deeply becomes a part of us.” Then the golfers are sent off silently with the words: MAY OUR HEARTS AND SPIRITS RISE WITH THESE BALLOONS IN THEIR HONOR AND MEMORY.
This year there was a great turn out for golfers and donors. Thanks to all of you who participated and helped the efforts here in San Antonio. There were 2 Gold sponsors, 2 Silver Sponsors and 27 Bronze sponsors. Sponsors receive a wooden plaque with their logo, and this year it had our kids’ pictures in the background. I do not pick these photos. The very talented Rick Guidotti takes them at our conference and our PR/marketing community advisory board member chooses the photos and designs the plaque. Kiki Lindholm donates her time and talents each year and creates an amazing brochure. Kudos to the new syndrome groups Tetrasomy 18p, Ring 18 and the Bereavement group who joined 18q- and 18p- groups who last year started a friendly competition to raise enough money for a Hole sponsorship. The results are listed below. Tetrasomy 18p was our leader and actually earned enough to earn the title Silver Sponsor.
Tet18p $3,032.00
18q- $1,796.50
18p- $1,130.00
Bereavement $1,006.00
Ring 18 $550.00
Total $7,314.5
You were a part of helping us raise about $64,000.00 (net)! After a small set back during recent year’s economic turmoil, which interrupted our steady climb, we are back on track and this marks our best Chromosome 18 Charity Golf Tournament yet!!
Thank you to all of the folks who helped with silent auction items and prizes. We had families donate door prizes and auction items. We had over 40 door prizes and silent auction items like Southwest Airline Tickets, JW Marriott Hotel package, Hampton Film Festival Passes, Team signed Spurs basketball, a mountain bike, Peyton Manning signed photograph, artwork, a diamond necklace and more.
Many of the golfers came up to us after and said they couldn’t wait until next year. We always try to keep things exciting each year to keep things fresh. This year we once again had one community advisory board member get his new company Dulce Vida Tequila, to donate a margarita machine next to one of the holes. That helped our golfers cool off quick. Either that or the just “forgot” how hot they were. Our San Antonio Spurs Coyote was also on hand for some comic relief.
The golf tournament is a lot of work but when everything comes together and is successful for The Registry, it is all worth it. Raising money for The Chromosome 18 Registry means helping our children adults and families by getting us a little closer to finding the answers we need. So be thinking how you can be a part of this event next year. Our 12th Annual Chromosome 18 Charity Golf Tournament will be held on Saturday, May 19th at Canyon Springs Golf Club.
Claudia Traa
To see a list of everyone who had a hand in the success of this year's Tournament, click here.
Our 11th Annual Chromosome 18 Charity Golf Tournament was held on May 14, 2011. It was a wonderful event filled with familiar faces as well as new friends. We had 140 golfers and some members of our Executive Board present. David Aldrup, Liz Cody and Ross Traa were there, adding something special to everyone’s day. This was the fourth year we held the event at Canyon Springs Golf Club, and it is a very picturesque venue. It is the epitome of Texas Hill country with its wild flowers, waterfall, old barns, architecture, and real live long horns. The pavilion where the registration, breakfast, lunch, and awards reception is held is a big circular room with rafters and wood. There is plenty of space in this one room for all of our golfers and our 25+ volunteers.
The day began at about 5:00 am for many of our volunteers. After setting up and getting the golfers situated, we have our balloon release ceremony. As the golfers are all lined up in their carts, we call the names of children who have died in the recent past and had a chromosome 18 syndrome, or those individuals who are connected to The Registry who have passed away. After their names are called, one of our board members or that person’s family member releases the balloon. Although the day was particularly windy, the balloons made their way up to the clouds. The golfers were read a quote from Helen Keller: “What we once enjoyed and deeply loved, we can never lose – for all that we love deeply becomes a part of us.” Then the golfers are sent off silently with the words: MAY OUR HEARTS AND SPIRITS RISE WITH THESE BALLOONS IN THEIR HONOR AND MEMORY.
This year there was a great turn out for golfers and donors. Thanks to all of you who participated and helped the efforts here in San Antonio. There were 2 Gold sponsors, 2 Silver Sponsors and 27 Bronze sponsors. Sponsors receive a wooden plaque with their logo, and this year it had our kids’ pictures in the background. I do not pick these photos. The very talented Rick Guidotti takes them at our conference and our PR/marketing community advisory board member chooses the photos and designs the plaque. Kiki Lindholm donates her time and talents each year and creates an amazing brochure. Kudos to the new syndrome groups Tetrasomy 18p, Ring 18 and the Bereavement group who joined 18q- and 18p- groups who last year started a friendly competition to raise enough money for a Hole sponsorship. The results are listed below. Tetrasomy 18p was our leader and actually earned enough to earn the title Silver Sponsor.
Tet18p $3,032.00
18q- $1,796.50
18p- $1,130.00
Bereavement $1,006.00
Ring 18 $550.00
Total $7,314.5
You were a part of helping us raise about $64,000.00 (net)! After a small set back during recent year’s economic turmoil, which interrupted our steady climb, we are back on track and this marks our best Chromosome 18 Charity Golf Tournament yet!!
Thank you to all of the folks who helped with silent auction items and prizes. We had families donate door prizes and auction items. We had over 40 door prizes and silent auction items like Southwest Airline Tickets, JW Marriott Hotel package, Hampton Film Festival Passes, Team signed Spurs basketball, a mountain bike, Peyton Manning signed photograph, artwork, a diamond necklace and more.
Many of the golfers came up to us after and said they couldn’t wait until next year. We always try to keep things exciting each year to keep things fresh. This year we once again had one community advisory board member get his new company Dulce Vida Tequila, to donate a margarita machine next to one of the holes. That helped our golfers cool off quick. Either that or the just “forgot” how hot they were. Our San Antonio Spurs Coyote was also on hand for some comic relief.
The golf tournament is a lot of work but when everything comes together and is successful for The Registry, it is all worth it. Raising money for The Chromosome 18 Registry means helping our children adults and families by getting us a little closer to finding the answers we need. So be thinking how you can be a part of this event next year. Our 12th Annual Chromosome 18 Charity Golf Tournament will be held on Saturday, May 19th at Canyon Springs Golf Club.
Claudia Traa
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