As a Registry member, you will automatically be included in the most appropriate Syndrome Group.  There are five syndrome groups.  They include:

• 18p-
• 18q-
• Ring 18
• Tetrasomy 18p
• Trisomy 18

Each Syndrome Group has a coordinator.  This individual collects and publishes letters from families in a newsletter that is only circulated to other members of that Syndrome Group.  This gives families the chance to ask questions and share information in an informal, candid format.