A bereavement support group of the Chromosome 18 Registry and Research Society has been established to provide continued encouragement and support for families whose children with chromosome 18 anomalies have died.  

Our bereavement support includes a private listserve and beginning in 2008, a family gathering will be held in conjunction with the Chromosome 18 Registry and Research Society annual family conference.  

Our hope is to provide a place for families to continue to be engaged with the Registry in a nurturing environment which addresses the specific needs of grieving families.

To learn more about this group, please contact Racine Ghiz or Charlett Lambden.