To help individuals with chromosome 18 abnormalities overcome the obstacles they face so they might lead healthy, happy, and productive lives. We do this through:
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Welcome to the Chromosome 18 Registry & Research Society!
If you are the family of a child that has just been diagnosed with a chromosome 18 abnormality, please start by reading this welcome letter from Dr. Jannine Cody, Founder and President of the Chromosome 18 Registry & Research Society.
The Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with one of the chromosome 18 abnormalities. We are also proud to count among our members affected individuals, extended family members and professionals. Membership is open to any interested person. We are a 501(c)(3) non-profit, tax-exempt public charity.
Our work is supported by memberships and donations from individuals and charitable organizations. We have met the strict criteria for fiscal responsibility set by the Combined Federal Campaign.
Becoming a Member
Find Out More About How You Can Help
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Meet the people who make the Chromosome 18 Registry & Research Society tick!
Learn about our 15th Annual Conference, to be held in San Antonio, Texas from July 6th to July 9th!
Conference Website