The Annual Registry Golf Tournament is nearly here!  Every year, we hold a friendly competition among the different condition groups to see who can raise the most money to sponsor a hole at the tournament.  As of Monday, May 14th, here are the current standings:

18q-: $2080
Tetrasomy 18p: $1470
Ring 18: $1215
18p-: $905

We also have some other Registry groups raising money to sponsor a hole!

Sibling Group: $160
Putting Hole in Honor of Jim Ellwanger: $1000

To make a donation, click here, and don't forget to write which group you're supporting in the comments section!

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Welcome to the Chromosome 18 Registry & Research Society!  

If you are the family of a child that has just been diagnosed with a chromosome 18 abnormality, please start by reading this welcome letter from Dr. Jannine Cody, Founder and President of the Chromosome 18 Registry & Research Society.

The Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with a chromosome 18 abnormality. We are also proud to count among our members affected individuals, extended family members, and professionals. Membership is open to any interested person. We are a 501(c)(3) non-profit, tax-exempt public charity.

Our work is supported by memberships and donations from individuals and charitable organizations. We have met the strict criteria for fiscal responsibility set by the Combined Federal Campaign.

Becoming a Member

Find Out More About How You Can Help 

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