Chromosome 18 Registry & Research Society (Europe)
The University of Texas Health Science Center at San Antonio,
Chromosome 18 Clinical Research Center:
UTHSCSA
1995 "Mission" article: San Antonio becomes the home of 18q- research
Groups Involved with Chromosome 18 Abnormalities:
SOFT
SOFT (United Kingdom)
Trisomy 18 Support Foundation
National Umbrella Organizations:
Genetic Alliance
NORD
National Health Council
Growth and Growth Hormone Treatment:
Human Growth Foundation
The MAGIC Foundation
Sibling Support:
The Sibling Support Project (Don Meyer)
Information on Disabilities and Related Issues:
National Dissemination Center for Children with Disabilities (NICHCY)
NICHCY Publication Describing the Process of an Evaluation for Special Education Eligibility
Chromosome 18 Registry & Research Society in the Media:
Dr. Cody's story is told in a great article in Time Magazine.
Savior Parents
In 2001, The Chromosome 18 Registry & Research Society was featured in Wired Magazine.
The Citizen Scientists
"Good" Versus "Bad" Science:
Sense About Science
Find a Pediatric Endocrinologist:
Lawson Wilkins Pediatric Endocrine Society
Find a Genetics Provider:
Medical Information About a Large Variety of Conditions:
Genetics Home Reference
diseasesconditions.com
WebMD
Positive Exposure:
Rick Guidotti is a renowned photographer who has spent time with and photographed some of our children. The results are beautiful. You may visit Rick's site at:
POSITIVE EXPOSURE
Caring for the Caregiver:
The Complete Caregiver is a fantastic website with resources aimed at helping parents take better care of themselves as well as their children.
The Complete Caregiver