2015 C18 Charity Golf Tournament  

Our 15th Annual Chromosome 18 Charity Golf Tournament will be held on Saturday, May 2, 2015. There are lots of ways for you to get involved. Join the excitement and help us make our 15th annual golf tournament the best yet! 

Click here if you are interested in making a donation or fundraising with a team.

Click here if you are interested in playing in the tournament.

2015 Conference  

The 2015 conference will be held from July 26th to July 29th at the Salt Lake Marriott Downtown at City Creek in Salt Lake City, Utah.  We hope that you can join us for what will surely be an exciting and informative experience!

Latest Conference Information

View Conference Schedule

Make hotel reservations

Birdies for Charity  


Our annual "Birdies for Charity" campaign is kicking off! Here's how this fun event works.  You make a pledge to give a set amount for every birdie scored during the 2015 Valero Texas Open.  So, for example, in 2014, 1,714 birdies were made.  So, a penny pledge last year would have equated to $17.14.  To make a pledge, just click here! (You will have the opportunity to select the Registry as your charity of choice!)

A Heart-Warming Video from Down Under  

We are excited to share the story of one of the many wonderful families of The Chromosome 18 Registry & Research Society. The Morgan family rallied their community around Ben, who has Tetrasomy 18p.  

Become a Member or Renew your Membership  

-  Access to our closed Facebook group

-  Access to our Caregiver Message Board with syndrome specific forums

-  Discounted registration fee for the Annual Family Conference 


Welcome from the Registry  
The Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with a chromosome 18 abnormality. We are also proud to count among our members affected individuals, extended family members, and professionals. Membership is open to any interested person. We are a 501(c)(3) non-profit, tax-exempt public charity.

Our work is supported by memberships and donations from individuals and charitable organizations. We have met the strict criteria for fiscal responsibility set by the Combined Federal Campaign.

Photograph courtesy of Rick Guidotti of Positive Exposure
Welcome Letter from Dr. Jannine Cody  

Welcome to the Chromosome 18 Registry & Research Society!  

If you are the family of a child that has just been diagnosed with a chromosome 18 abnormality, please start by reading this welcome letter from Dr. Jannine Cody, Founder and President of the Chromosome 18 Registry & Research Society.

Winter 2014 European Newsletter  

From everyone at the Chromosome 18 European Chapter, we wish you a peaceful holiday season and a happy, healthy New Year!  Click here to find out the latest from our European friends.

Pardon Our Dust  
Please pardon our dust as we work to create a website that better serves the needs of our community!

Attention NYC'ers!  

Are you in the NYC area? On March 25th, Anejo Tribeca will be hosting a Celebrity Chef Dinner to raise funds for the Chromosome 18 Registry and Research Society. Tickets include a 4-course meal with tequila pairing, each prepared by a celebrity chef.  It’s going to be an amazing night!  Seats are going fast so make your reservations now by calling 212-920-6270.


Learn More

Support the Registry  

Like Us on Facebook!  

Visite nuestro sitio en español!  

Look Who's Making a Difference!  

The Chromosome 18 Brochure  

Please click here to view our new Brochure. 

Upcoming Events  

        View Events Calendar

Contact the Registry Office  


7155 Oakridge Drive
San Antonio TX 78229

A Note Regarding Funding
96% of the Registry budget goes to programs and services. Only 4% is spent on administration and fundraising.
Combined Federal Campaign

Federal employees can give through the CFC!  The Registry's CFC number is 10291.  Texas state employees can also donate through the State Employee Charitable Campaign.  Companies participating through the United Way can donate using "Donor's Choice".



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