2014 Phantom Tea  

Birdies for Charity  


Our annual "Birdies for Charity" campaign is kicking off! Here's how this fun event works.  You make a pledge to give a set amount for every birdie scored during the 2015 Valero Texas Open.  So, for example, in 2014, 1,714 birdies were made.  So, a penny pledge last year would have equated to $17.14.  To make a pledge, just click here! (You will have the opportunity to select the Registry as your charity of choice!)

Meet the Mice!  

The Chromosome 18 Registry & Research Society is thrilled to introduce its latest campaign initiative: "Meet the Mice".  Our goal: the purchase of genetically engineered mice that will advance the science of chromosome 18 conditions.  Learn more.


A Heart-Warming Video from Down Under  

We are excited to share the story of one of the many wonderful families of The Chromosome 18 Registry & Research Society. The Morgan family rallied their community around Ben, who has Tetrasomy 18p.  

Become a Member or Renew your Membership  

-  Access to our closed Facebook group

-  Access to our Caregiver Message Board with syndrome specific forums

-  Discounted registration fee for the Annual Family Conference 


Welcome from the Registry  
The Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with a chromosome 18 abnormality. We are also proud to count among our members affected individuals, extended family members, and professionals. Membership is open to any interested person. We are a 501(c)(3) non-profit, tax-exempt public charity.

Our work is supported by memberships and donations from individuals and charitable organizations. We have met the strict criteria for fiscal responsibility set by the Combined Federal Campaign.

Photograph courtesy of Rick Guidotti of Positive Exposure
Welcome Letter from Dr. Jannine Cody  

Welcome to the Chromosome 18 Registry & Research Society!  

If you are the family of a child that has just been diagnosed with a chromosome 18 abnormality, please start by reading this welcome letter from Dr. Jannine Cody, Founder and President of the Chromosome 18 Registry & Research Society.

Valero Benefit for Children Grant Recipient  


On September 11th, Claudia and Valerie attended the "Boots, Bluebonnets, and a Benefit" reception to receive a $10,000 check from Valero.  The Registry was nominated by Troy Haby, Director of Corporate Sponsorships at Valero, to receive a grant in honor of our dedication to children and the vital role we play in the San Antonio community.  Thank you Valero and Troy for your continued support!

from left to right, William R Klesse, Chairman of the Board & former CEO of Valero Energy Corp., Valerie Rogler, Claudia Traa, and Troy Haby, Director Corporate Sponsorships at Valero Energy Corp

Winter 2014 European Newsletter  

From everyone at the Chromosome 18 European Chapter, we wish you a peaceful holiday season and a happy, healthy New Year!  Click here to find out the latest from our European friends.

Support the Registry  

Like Us on Facebook!  

Visite nuestro sitio en espa├▒ol!  

Look Who's Making a Difference!  

The Chromosome 18 Brochure  

Please click here to view our new Brochure. 

Upcoming Events  

        View Events Calendar

Contact the Registry Office  


7155 Oakridge Drive
San Antonio TX 78229

A Note Regarding Funding
96% of the Registry budget goes to programs and services. Only 4% is spent on administration and fundraising.
Combined Federal Campaign

Federal employees can give through the CFC!  The Registry's CFC number is 10291.  Texas state employees can also donate through the State Employee Charitable Campaign.  Companies participating through the United Way can donate using "Donor's Choice".



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