Our 15th Annual Chromosome 18 Charity Golf Tournament will be held on Saturday, May 2, 2015. There are lots of ways for you to get involved. Join the excitement and help us make our 15th annual golf tournament the best yet!
Click here if you are interested in making a donation or fundraising with a team.
Click here if you are interested in playing in the tournament.
The 2015 conference will be held from July 26th to July 29th at the Salt Lake Marriott Downtown at City Creek in Salt Lake City, Utah. We hope that you can join us for what will surely be an exciting and informative experience!
Latest Conference Information
View Conference Schedule
Make hotel reservations
Our annual "Birdies for Charity" campaign is kicking off! Here's how this fun event works. You make a pledge to give a set amount for every birdie scored during the 2015 Valero Texas Open. So, for example, in 2014, 1,714 birdies were made. So, a penny pledge last year would have equated to $17.14. To make a pledge, just click here! (You will have the opportunity to select the Registry as your charity of choice!)
We are excited to share the story of one of the many wonderful families of The Chromosome 18 Registry & Research Society. The Morgan family rallied their community around Ben, who has Tetrasomy 18p.
- Access to our closed Facebook group
- Access to our Caregiver Message Board with syndrome specific forums
- Discounted registration fee for the Annual Family Conference
Our work is supported by memberships and donations from individuals and charitable organizations. We have met the strict criteria for fiscal responsibility set by the Combined Federal Campaign.
Welcome to the Chromosome 18 Registry & Research Society!
If you are the family of a child that has just been diagnosed with a chromosome 18 abnormality, please start by reading this welcome letter from Dr. Jannine Cody, Founder and President of the Chromosome 18 Registry & Research Society.
From everyone at the Chromosome 18 European Chapter, we wish you a peaceful holiday season and a happy, healthy New Year! Click here to find out the latest from our European friends.
Are you in the NYC area? On March 25th, Anejo Tribeca will be hosting a Celebrity Chef Dinner to raise funds for the Chromosome 18 Registry and Research Society. Tickets include a 4-course meal with tequila pairing, each prepared by a celebrity chef. It’s going to be an amazing night! Seats are going fast so make your reservations now by calling 212-920-6270.
Learn about Registry members who are truly making a difference!
Please click here to view our new Brochure.
Federal employees can give through the CFC! The Registry's CFC number is 10291. Texas state employees can also donate through the State Employee Charitable Campaign. Companies participating through the United Way can donate using "Donor's Choice".