2014 Golf Tournament - May 3rd  

Click here to view more information about:

-  the tournament

-  becoming a sponsor

-  to register to play

Click here to bid on an Auction Item.

We are still accepting door prizes and silent auction items.  

In addition, the Syndrome Challenge is ON!  Last year, 18q- took the title.  Which team will win bragging rights in 2014?  Click here to contribute!


Annual Family Conference  

The 21st Annual Chromosome 18 Family Conference is right around the corner on July 6-9, 2014.  It will be held in Stamford CT this year, just a short distance from New York City.  Please click here for this year's conference information.  Registration for the conference will open on April 6th!

Calling All Runners....  

The Chromosome 18 Registry & Reserach Society is now an official charity for the Rock n Roll Marathon.  

This year we will be participating in two marathons:

Chicago Half Marathon - July 20, 2014

San Antonio Marathon & Half Marathon - December 7, 2014

If you would like more information, please contact the office at 210.657.4968 or office@chromosome18.org.


Birdies for Charity  


Thank you for your pledges which helped the Chromosome 18 Registry be ranked 12th in the Top 50 Charities in San Antonio!

If all pledges are collected, we will have made over $23,000 this year!  What an amazing effort by all our Chromosome 18 families and supporters!


Welcome from the Registry  
The Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with a chromosome 18 abnormality. We are also proud to count among our members affected individuals, extended family members, and professionals. Membership is open to any interested person. We are a 501(c)(3) non-profit, tax-exempt public charity.

Our work is supported by memberships and donations from individuals and charitable organizations. We have met the strict criteria for fiscal responsibility set by the Combined Federal Campaign.

Photograph courtesy of Rick Guidotti of Positive Exposure
Welcome Letter from Dr. Jannine Cody  

Welcome to the Chromosome 18 Registry & Research Society!  

If you are the family of a child that has just been diagnosed with a chromosome 18 abnormality, please start by reading this welcome letter from Dr. Jannine Cody, Founder and President of the Chromosome 18 Registry & Research Society.

The Chromosome 18 Brochure  

Please click here to view our new Brochure. 

Upcoming Events  

        View Events Calendar

Look Who's Making a Difference!  

2014 Annual Chromosome 18 Charity Auction  

We have lots of great items at our on-line auction.  Click here to take a look!

Like Us on Facebook!  

Registry Facebook Page  

Join our general Facebook page open to the public. .  

Support the Registry  

Contact the Registry Office  


7155 Oakridge Drive
San Antonio TX 78229

Become a Member or Renew your Membership  

-  You have access to private syndrome-specific Facebook pages

-  Discounted registration fee for the Family Conference each year

Click here to join or to renew your membership!

Visite nuestro sitio en espa├▒ol!  

A Note Regarding Funding
96% of the Registry budget goes to programs and services. Only 4% is spent on administration and fundraising.
Combined Federal Campaign

Federal employees can give through the CFC!  The Registry's CFC number is 10291.  Texas state employees can also donate through the State Employee Charitable Campaign.  Companies participating through the United Way can donate using "Donor's Choice".



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