2015 C18 Charity Golf Tournament  

Our 15th Annual Chromosome 18 Charity Golf Tournament will be held on Saturday, May 2, 2015. There are lots of ways for you to get involved. Join the excitement and help us make our 15th annual golf tournament the best yet! 

Click here if you are interested in making a donation or fundraising with a team.

Click here if you are interested in playing in the tournament.

NEW! Click here to view our Online Auction. We have many great items to bid on this year! Please keep checking back as we will be adding more items as the tournament approaches.



Great Plains Regional Event  

Where: 9205 Loch Glen Drive, Village of Lakewood, IL 60014

When:  APRIL 25, 2015.  1:00 pm until whenever

Drinks and Food:  The adult beverages are BYOB.  The food will be pot-luck style; bring a favorite dish to share. Please e-mail me your choice for a dish to share so we don’t end up with all chips and veggie trays.  Meat, buns and bottled water will be provided.

RSVP’s are due to Cindy by April 15 via e-mail cjosefson@yahoo.com or phone (847-546-7539).

Our Goal is a fun get-together where we may meet, share information and discuss plans for future regional events.



A Heart-Warming Video from Down Under  

We are excited to share the story of one of the many wonderful families of The Chromosome 18 Registry & Research Society. The Morgan family rallied their community around Ben, who has Tetrasomy 18p.  
 



Upcoming Events  

        View Events Calendar


Look Who's Making a Difference!  


Become a Member or Renew your Membership  

-  Access to our closed Facebook group

-  Access to our Caregiver Message Board with syndrome specific forums

-  Discounted registration fee for the Annual Family Conference 

 



Welcome from the Registry  
The Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with a chromosome 18 abnormality. We are also proud to count among our members affected individuals, extended family members, and professionals. Membership is open to any interested person. We are a 501(c)(3) non-profit, tax-exempt public charity.

Our work is supported by memberships and donations from individuals and charitable organizations. We have met the strict criteria for fiscal responsibility set by the Combined Federal Campaign.



Photograph courtesy of Rick Guidotti of Positive Exposure
Welcome Letter from Dr. Jannine Cody  

Welcome to the Chromosome 18 Registry & Research Society!  

If you are the family of a child that has just been diagnosed with a chromosome 18 abnormality, please start by reading this welcome letter from Dr. Jannine Cody, Founder and President of the Chromosome 18 Registry & Research Society.



Winter 2014 European Newsletter  

From everyone at the Chromosome 18 European Chapter, we wish you a peaceful holiday season and a happy, healthy New Year!  Click here to find out the latest from our European friends.



Contact the Registry Office  

 

 
210.657.4968
 
7155 Oakridge Drive
San Antonio TX 78229
 


2015 Conference  

The 2015 conference will be held from July 26th to July 29th at the Salt Lake Marriott Downtown at City Creek in Salt Lake City, Utah.  We hope that you can join us for what will surely be an exciting and informative experience!

Register Now!

Latest Conference Information

View Conference Schedule

Make hotel reservations



Run for the Chrome!  

Join The Chromosome 18 Registry & Research Society's health conscious fundraising event, Run for the Chrome. Our goal is to bring together health-minded people to run/walk to raise awareness and money for the Registry's mission. Registration is now open for Seattle and Chicago.  On June 13th, Seattle will offer a full and half marathon.  On July 18th & 19th, Chicago will offer a 5k, 10k, and half marathon.  Sign up today!

Register for Seattle!

 



Support the Registry  



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Visite nuestro sitio en español!  




The Chromosome 18 Brochure  

Please click here to view our new Brochure. 



A Note Regarding Funding
96% of the Registry budget goes to programs and services. Only 4% is spent on administration and fundraising.
Combined Federal Campaign

Federal employees can give through the CFC!  The Registry's CFC number is 10291.  Texas state employees can also donate through the State Employee Charitable Campaign.  Companies participating through the United Way can donate using "Donor's Choice".

 

 

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