Run for the Chrome!  

Join The Chromosome 18 Registry & Research Society's health conscious fundraising event, Run for the Chrome. Our goal is to bring together health-minded people to run/walk to raise awareness and money for the Registry's mission. Registration is now open for Seattle and Chicago.  On June 13th, Seattle will offer a full and half marathon.  On July 18th & 19th, Chicago will offer a 5k, 10k, and half marathon.  Sign up today!


Register for Seattle!


Register for Chicago!

Australasian Social Day  

Chromosome 18 Australasia invites their members to the next social day which will be held in Melbourne, Victoria on 24th May 2015.

Please email or phone (02)9580-5707 for further information.

Support the Registry  

A Heart-Warming Video from Down Under  

We are excited to share the story of one of the many wonderful families of The Chromosome 18 Registry & Research Society. The Morgan family rallied their community around Ben, who has Tetrasomy 18p.  

Upcoming Events  

        View Events Calendar

Look Who's Making a Difference!  

Become a Member or Renew your Membership  

-  Access to our closed Facebook group

-  Access to our Caregiver Message Board with syndrome specific forums

-  Discounted registration fee for the Annual Family Conference 


Welcome from the Registry  
The Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with a chromosome 18 abnormality. We are also proud to count among our members affected individuals, extended family members, and professionals. Membership is open to any interested person. We are a 501(c)(3) non-profit, tax-exempt public charity.

Our work is supported by memberships and donations from individuals and charitable organizations. We have met the strict criteria for fiscal responsibility set by the Combined Federal Campaign.

Photograph courtesy of Rick Guidotti of Positive Exposure
Welcome Letter from Dr. Jannine Cody  

Welcome to the Chromosome 18 Registry & Research Society!  

If you are the family of a child that has just been diagnosed with a chromosome 18 abnormality, please start by reading this welcome letter from Dr. Jannine Cody, Founder and President of the Chromosome 18 Registry & Research Society.

Winter 2014 European Newsletter  

From everyone at the Chromosome 18 European Chapter, we wish you a peaceful holiday season and a happy, healthy New Year!  Click here to find out the latest from our European friends.

Contact the Registry Office  


7155 Oakridge Drive
San Antonio TX 78229

2015 Conference  

The 2015 conference will be held from July 26th to July 29th at the Salt Lake Marriott Downtown at City Creek in Salt Lake City, Utah.  We hope that you can join us for what will surely be an exciting and informative experience!

Register Now!

Interested In Being A Corporate Sponsor?

Latest Conference Information

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Visite nuestro sitio en espa├▒ol!  

The Chromosome 18 Brochure  

Please click here to view our new Brochure. 

A Note Regarding Funding
96% of the Registry budget goes to programs and services. Only 4% is spent on administration and fundraising.
Combined Federal Campaign

Federal employees can give through the CFC!  The Registry's CFC number is 10291.  Texas state employees can also donate through the State Employee Charitable Campaign.  Companies participating through the United Way can donate using "Donor's Choice".



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