Founded in 1990, The Chromosome 18 Registry & Research Society is a registered 501(c)(3) non-profit, tax-exempt public charity dedicated to making chromosome 18 conditions the first treatable chromosome abnormalities. We count within our membership thousands of parents, siblings, extended family and friends, businesses, and affected individuals. Registry membership is open to any interested person.
Our work is supported by private donations from members, foundations and charitable organizations, businesses, and others interested in supporting our mission. We use these contributions and gifts to invest in both people and science; supporting our members through education and a sense of community while also focusing squarely on impactful clinical research that will lead to healthier, happier, and more independent lives for those affected and their families.
Are you looking for an easy way to help support the Registry and our mission? Shop on Amazon Smile and a portion of your order total will be donated to us by Amazon!
We began our relationship with the Rock ‘n’ Roll Marathon Series in 2014 and have since raised over $45,000 to fund Registry services and research. Many cities offer shorter distance races such as the 5k and 10k so please check out our event page for more information on our upcoming races. We hope you can join us.
The Chromosome 18 Registry and Research Society (Europe) will host their 4th Family Conference on August 5th-7th at the Rome Park Marriott Hotel.
Saturday, Aug 6th – Galloping Lane Farm, Ringoes, NJ, 12-4pm – lunch picnic – sprinkler fun and hippo-therapy for smaller children. RSVP to Liz Woodfield at email@example.com
Please join us for the Chromosome 18 Great Lakes Region Family Picnic! Saturday, August 13 at 12 PM- Grace Gathering, 3157 Minnich Rd, New Haven, Indiana 46774 (more…)
Join us on Sunday, August 28th, 2016 at Shady Oaks Camp in Homer Glen, IL for a day of fun and games.
We are excited to share the story of one of the many wonderful families of The Chromosome 18 Registry & Research Society. The Morgan family rallied their community around Ben, who has Tetrasomy 18p.