Founded in 1990, The Chromosome 18 Registry & Research Society is a registered 501(c)(3) non-profit, tax-exempt public charity dedicated to making chromosome 18 conditions the first treatable chromosome abnormalities. We count within our membership thousands of parents, siblings, extended family and friends, businesses, and affected individuals. Registry membership is open to any interested person.
Our work is supported by private donations from members, foundations and charitable organizations, businesses, and others interested in supporting our mission. We use these contributions and gifts to invest in both people and science; supporting our members through education and a sense of community while also focusing squarely on impactful clinical research that will lead to healthier, happier, and more independent lives for those affected and their families.
Are you looking for an easy way to help support the Registry and our mission? Shop on Amazon Smile and a portion of your order total will be donated to us by Amazon!
We began our relationship with the Rock ‘n’ Roll Marathon Series in 2014 and have since raised over $35,000 to fund Registry services and research. We have committed to the following cities for the remainder of 2015: San Jose, St. Louis, and San Antonio. We hope you can join us.
Over the past 19 years, Valero Texas Open has helped hundreds of San Antonio non-profits raise money through Birdies for Charity®; a no-cost program that gives 100% of the funds we raise back to our organization. This year, as in many years past, The Chromosome 18 Registry and Research Society is teaming up with Birdies for Charity to raise funds for the Registry.
Mark your calendars! We’re going to have a regional gathering in the Dallas/Ft.Worth area on March 19th.
The Irene McKay I Can Do That Virtual 5K Run/Walk will be held from the 1st through the 30th of April, 2016.
We are excited to share the story of one of the many wonderful families of The Chromosome 18 Registry & Research Society. The Morgan family rallied their community around Ben, who has Tetrasomy 18p.