Office Closure  

The Registry office is closed for the Annual Conference and will reopen on Monday, July 6th.


What's New on the Website?  

6/12 -  Drs Cody and Hale have created a series of podcasts to answer all your questions about genetics!

6/1 - Online conference registration will close on June 14th.  Don't wait until the last minute!

3/31 - Learn about all the great work Registry members are doing!


9th Annual Golf Tournament  

The Registry's Annual Golf Tournament is our largest fundraising activity of the year.  Read here to learn about how you can help, even if you can't make it to the event!


Birdies for Charity  

Information for the 2009 Birdies for Charity campaign is now available!

Learn More


Mysteries  

Read a fabulous article about our 2008 conference!

Mysteries


Contribute  


Welcome  

Welcome to the Chromosome 18 Registry & Research Society!  

If you are the family of a child that has just been diagnosed with a chromosome 18 abnormality, please start by reading this welcome letter from Dr. Jannine Cody, Founder and President of the Chromosome 18 Registry & Research Society.

The Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with a chromosome 18 abnormality. We are also proud to count among our members affected individuals, extended family members, and professionals. Membership is open to any interested person. We are a 501(c)(3) non-profit, tax-exempt public charity.

Our work is supported by memberships and donations from individuals and charitable organizations. We have met the strict criteria for fiscal responsibility set by the Combined Federal Campaign.

Becoming a Member

 

Find Out More About How You Can Help 

 

Visit our Photo Gallery


Our Mission  

To help individuals with chromosome 18 abnormalities overcome the obstacles they face so they might lead healthy, happy, and productive lives. We do this through:


Our Motivation  



2009 Conference Registration Opens  


Look Who's Making a Difference!  


Facebook  

The Registry is now on Facebook!

We invite you to join our group!


Contact Us  


Team 18  

Meet the people who make the Chromosome 18 Registry & Research Society tick!


16th Annual Conference  

The 16th Annual Conference will be held in Las Vegas, Nevada, from June 28th to July 2nd, 2009.  Stay tuned for details!

Conference Website


Upcoming Events  

        View Events Calendar


A Note Regarding Funding
96% of the Registry budget goes to programs and services. Only 3% is spent on administration and fundraising.
 

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