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Registry Office Closed  

The Registry office will be closed from March 15 through March 21 for Spring Break.  We will be back in the office on March 22nd.  Thank you for your understanding and patience.


17th Annual Conference  


Happy Birthday!  

Help us celebrate the Registry's 20th birthday!

Take the Twenty Pledge!

What's Your Pledge?


What's New on the Website?  

3/10 - Registry Board members recently traveled to Washington DC to advocate for funds to research chromosome abnormalities.

2/1 - We have more fundraiser photos!  This one comes from the Furgiuele Family's Skating Event!

1/20 - Check out photos from some of our members' fundraisers!  We've just posted pictures from the Botellos' 9th Annual Golf Tournament!

12/29 - We have posted a summary of Pitt-Hopkins syndrome.

12/29 - Dr. Cody talks about the treatment of chromosome conditions in this article about a child with ring 18.

12/24 - One of our members, in the news!

12/1 - We have created a video library, featuring Registry families!

 


Our Motivation  



Contribute  


Contact Us  


Get to Know the Registry  

We invite you to hear more from our members and their families in our Video Library.


Welcome  

Welcome to the Chromosome 18 Registry & Research Society!  

If you are the family of a child that has just been diagnosed with a chromosome 18 abnormality, please start by reading this welcome letter from Dr. Jannine Cody, Founder and President of the Chromosome 18 Registry & Research Society.

The Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with a chromosome 18 abnormality. We are also proud to count among our members affected individuals, extended family members, and professionals. Membership is open to any interested person. We are a 501(c)(3) non-profit, tax-exempt public charity.

Our work is supported by memberships and donations from individuals and charitable organizations. We have met the strict criteria for fiscal responsibility set by the Combined Federal Campaign.

Becoming a Member

 

Find Out More About How You Can Help 

 

Visit our Photo Gallery


Our Mission  

To help individuals with chromosome 18 abnormalities overcome the obstacles they face so they might lead healthy, happy, and productive lives. We do this through:


Team 18  

Meet the people who make the Chromosome 18 Registry & Research Society tick!


Attention New Yorkers!  

There will be a benefit held on April 22nd supporting Positive Exposure and Rick Guidotti. Please consider attending!


2010 Birdies for Charity  


15th Annual Phantom Tea  


Save The Date!  

The Registry's 10th Annual Golf Tournament will take place on May 22nd, 2010.  Click here for the latest information! 


Look Who's Making a Difference!  


Facebook  

The Registry is now on Facebook!

We invite you to join our group!


Upcoming Events  

        View Events Calendar


A Note Regarding Funding
96% of the Registry budget goes to programs and services. Only 3% is spent on administration and fundraising.
 

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