Founded in 1990, The Chromosome 18 Registry & Research Society is a registered 501(c)(3) non-profit, tax-exempt public charity dedicated to making chromosome 18 conditions the first treatable chromosome abnormalities. We count within our membership thousands of parents, siblings, extended family and friends, businesses, and affected individuals. Registry membership is open to any interested person.
Our work is supported by private donations from members, foundations and charitable organizations, businesses, and others interested in supporting our mission. We use these contributions and gifts to invest in both people and science; supporting our members through education and a sense of community while also focusing squarely on impactful clinical research that will lead to healthier, happier, and more independent lives for those affected and their families.
Shavano Park Tennis Club requests the pleasure of your company at our 4th Annual Cinco Martini Party to benefit the Chromosome 18 Registry & Research Society. An organization dedicated to help people with chromosome 18 abnormalities overcome the obstacles they face so they may lead happy, healthy, and productive lives.
Registration: Click HERE
The Australasian Chromosome 18 Registry & Research Society Conference will be held April 21st to 23rd 2017 at the Novotel Twin Waters Resort, Mudjimba Beach QLD Australia. (more…)
The Chromosome 18 Registry & Research Society’s main fundraiser of the year is our Starfish Dash – Run/Walk. This is a great event for all ages and the entire family can participate. The course leads you through the UT Health campus and easy parking is available. The event is FREE to all participants but we suggest fundraising/donations to participate. The runners will start off first, followed by walkers a few minutes later. You are welcome to bring strollers and wheelchairs but no pets are allowed on campus. A Health and Wellness Fair and Market Place will accompany the event. Lots of fun activities will be available at this very family-friendly event.
Registration: Coming Soon
We are excited to share the story of one of the many wonderful families of The Chromosome 18 Registry & Research Society. The Morgan family rallied their community around Ben, who has Tetrasomy 18p.