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Play 18 for Chromosome 18
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The 12th annual Chromosome 18 Golf Tournament will be held on Saturday, May 19th, 2012.
Registration is now open!
This is also a great time to read about last year's Tournament, not to mention thanking last year's wonderful sponsors, donors, and volunteers again!
The 12th annual Chromosome 18 Golf Tournament will be held on Saturday, May 19th, 2012.
Registration is now open!
This is also a great time to read about last year's Tournament, not to mention thanking last year's wonderful sponsors, donors, and volunteers again!
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Calling All Cooks!
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Barbara Grossman is collecting recipes for a Chromosome 18 Cookbook!! Funds raised from the sale of this cookbook will benefit the Registry!
Learn more here!
Barbara Grossman is collecting recipes for a Chromosome 18 Cookbook!! Funds raised from the sale of this cookbook will benefit the Registry!
Learn more here!
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Conference Sponsors
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The 2011 Conference is over, and it is safe to say that it was a grand success! We had over 300 people from around the world in attendance! The conference would not have been possible without generous donations from our sponsors. We encourage you to take a look at the list of sponsors and to support them, if at all possible!
The 2011 Conference is over, and it is safe to say that it was a grand success! We had over 300 people from around the world in attendance! The conference would not have been possible without generous donations from our sponsors. We encourage you to take a look at the list of sponsors and to support them, if at all possible!
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What Brings You Here?
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Print
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Welcome
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 Welcome to the Chromosome 18 Registry & Research Society!
If you are the family of a child that has just been diagnosed with a chromosome 18 abnormality, please start by reading this welcome letter from Dr. Jannine Cody, Founder and President of the Chromosome 18 Registry & Research Society. 
The Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with a chromosome 18 abnormality. We are also proud to count among our members affected individuals, extended family members, and professionals. Membership is open to any interested person. We are a 501(c)(3) non-profit, tax-exempt public charity.
Our work is supported by memberships and donations from individuals and charitable organizations. We have met the strict criteria for fiscal responsibility set by the Combined Federal Campaign.
Becoming a Member
Find Out More About How You Can Help
Visit our Photo Gallery
Welcome to the Chromosome 18 Registry & Research Society!
If you are the family of a child that has just been diagnosed with a chromosome 18 abnormality, please start by reading this welcome letter from Dr. Jannine Cody, Founder and President of the Chromosome 18 Registry & Research Society.
The Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with a chromosome 18 abnormality. We are also proud to count among our members affected individuals, extended family members, and professionals. Membership is open to any interested person. We are a 501(c)(3) non-profit, tax-exempt public charity.
Our work is supported by memberships and donations from individuals and charitable organizations. We have met the strict criteria for fiscal responsibility set by the Combined Federal Campaign.
Becoming a Member
Find Out More About How You Can Help
Visit our Photo Gallery
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Team 18
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Meet the people who make the Chromosome 18 Registry & Research Society tick!
Meet the people who make the Chromosome 18 Registry & Research Society tick!
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What's New on the Website?
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7/28 - Another family from "across the pond" has been featured in a local paper! Neve Mortimer has Ring 18, and her family talks about their experiences in this newspaper article!
3/25 - The family of George Donlan, who has Ring 18, is organizing a fundraiser in the UK and was featured in their local newspaper!
1/19 - Victor Pauca, who has Pitt-Hopkins syndrome, received a wonderful gift this year from his family-the ability to communicate! Read about it here. You can also watch a video that aired on CNN here!
11/30 - This holiday season, see how a big sister honors her brother, who has Ring 18!
7/28 - Another family from "across the pond" has been featured in a local paper! Neve Mortimer has Ring 18, and her family talks about their experiences in this newspaper article!
3/25 - The family of George Donlan, who has Ring 18, is organizing a fundraiser in the UK and was featured in their local newspaper!
1/19 - Victor Pauca, who has Pitt-Hopkins syndrome, received a wonderful gift this year from his family-the ability to communicate! Read about it here. You can also watch a video that aired on CNN here!
11/30 - This holiday season, see how a big sister honors her brother, who has Ring 18!
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This is for the Birdies!
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Visite nuestro sitio en español!
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Contact Us
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Our Motivation
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Conference Summaries!
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Registry Blog
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Registry on the Web
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Upcoming Events
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Look Who's Making a Difference!
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